Lump in Perineum - Prostatitis Forum & Social Network2024-03-28T19:06:32Zhttp://prostatitis.ning.com/forum/topics/lump-in-perineum?groupUrl=symptoms&commentId=2201951%3AComment%3A8113&groupId=2201951%3AGroup%3A5444&feed=yes&xn_auth=noAs a followup to some of the…tag:prostatitis.ning.com,2011-03-27:2201951:Comment:141352011-03-27T16:07:28.458ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
<p>As a followup to some of the discussion points about trigger point release made above, the study has since been published in full form. Its findings are summarized at the links below:</p>
<ul>
<li><a href="https://prostatitissurgery.com/Physical_Therapy.html" target="_blank">Myofascial (trigger point) release and paradoxical relaxation training</a></li>
<li><a href="http://thedoctorschannel.com/video/4146.html?specialty=" target="_blank">Intensive treatment protocol may help patients with…</a></li>
</ul>
<p>As a followup to some of the discussion points about trigger point release made above, the study has since been published in full form. Its findings are summarized at the links below:</p>
<ul>
<li><a target="_blank" href="https://prostatitissurgery.com/Physical_Therapy.html">Myofascial (trigger point) release and paradoxical relaxation training</a></li>
<li><a target="_blank" href="http://thedoctorschannel.com/video/4146.html?specialty=">Intensive treatment protocol may help patients with CP/CPPS</a> (video on The Doctor's Channel)</li>
</ul> I've posted a copy of the art…tag:prostatitis.ning.com,2010-07-20:2201951:Comment:81592010-07-20T00:52:00.000ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
I've posted a copy of the article on the home page, left column. Or click here: <br />
<a href="http://storage.ning.com/topology/rest/1.0/file/get/303155856?profile=original" target="_blank"><b>Phenotypically Directed Multimodal Therapy for Chronic Prostatitis/Chronic Pelvic Pain Syndrome</b></a>
I've posted a copy of the article on the home page, left column. Or click here: <br />
<a href="http://storage.ning.com/topology/rest/1.0/file/get/303155856?profile=original" target="_blank"><b>Phenotypically Directed Multimodal Therapy for Chronic Prostatitis/Chronic Pelvic Pain Syndrome</b></a> Makes sense. At 2 years in I…tag:prostatitis.ning.com,2010-07-19:2201951:Comment:81552010-07-19T07:50:52.000ZNikhttp://prostatitis.ning.com/profile/NikolasBartley
Makes sense. At 2 years in I was coping easily with my symptoms which were only really mild discomfort after intercourse and mild constipation, mostly in the 2 days following intercourse. A couple of Ibruprofen and I would forget all about it-they were the days LOL...!!!!
Makes sense. At 2 years in I was coping easily with my symptoms which were only really mild discomfort after intercourse and mild constipation, mostly in the 2 days following intercourse. A couple of Ibruprofen and I would forget all about it-they were the days LOL...!!!! Incidentally and apart from t…tag:prostatitis.ning.com,2010-07-19:2201951:Comment:81542010-07-19T03:36:16.000ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
Incidentally and apart from the technical note made above ...<br />
<br />
It would appear based upon a reading of the full article cited above that the patients being treated were new patients. The results seen in this apparently "virgin" cohort may not be easily reproduced in a much "tougher" cohort composed of patients who have already failed many treatments, as is often the case with men who are joining this forum.
Incidentally and apart from the technical note made above ...<br />
<br />
It would appear based upon a reading of the full article cited above that the patients being treated were new patients. The results seen in this apparently "virgin" cohort may not be easily reproduced in a much "tougher" cohort composed of patients who have already failed many treatments, as is often the case with men who are joining this forum. There appears to be another s…tag:prostatitis.ning.com,2010-07-19:2201951:Comment:81522010-07-19T03:02:57.000ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
There appears to be another study that uses the "6 points or more" definition of success: <a href="http://www.ncbi.nlm.nih.gov/pubmed/20363491" target="_blank">Phenotypically directed multimodal therapy for chronic prostatitis/...</a>. This standard was seen in 84% of the patients being studied: Men with symptoms averaing two years in duration and followed for 6 months. The average change in total CPSI score from 25 to 13.<br />
<br />
1) Where the men who on average experienced a 12-point drop in CPSI…
There appears to be another study that uses the "6 points or more" definition of success: <a href="http://www.ncbi.nlm.nih.gov/pubmed/20363491" target="_blank">Phenotypically directed multimodal therapy for chronic prostatitis/...</a>. This standard was seen in 84% of the patients being studied: Men with symptoms averaing two years in duration and followed for 6 months. The average change in total CPSI score from 25 to 13.<br />
<br />
1) Where the men who on average experienced a 12-point drop in CPSI satisfied?<br />
2) What is happening with the 16% who didn't have even a 6-point response? I imagine a very mild prostat…tag:prostatitis.ning.com,2010-07-12:2201951:Comment:81292010-07-12T13:52:31.000ZNikhttp://prostatitis.ning.com/profile/NikolasBartley
I imagine a very mild prostatitis sufferer (Like I was for the first 5 years) may find a drop of 6 points helpful, but now it's just a drop in the ocean. I believe they charge $6000 for the privilege of a 6 point drop. That's $1000 per point LOL....!!!
I imagine a very mild prostatitis sufferer (Like I was for the first 5 years) may find a drop of 6 points helpful, but now it's just a drop in the ocean. I believe they charge $6000 for the privilege of a 6 point drop. That's $1000 per point LOL....!!! I don't know about a "scheme"…tag:prostatitis.ning.com,2010-07-12:2201951:Comment:81282010-07-12T12:19:19.000ZJameshttp://prostatitis.ning.com/profile/James672
I don't know about a "scheme" - but certainly a claim of a reduction of 6 pts is less meaningful then we desire, deserve, or would try to achive.<br />
<br />
Only someone who never suffered this disease would think a 6 point reduction is meaningful.
I don't know about a "scheme" - but certainly a claim of a reduction of 6 pts is less meaningful then we desire, deserve, or would try to achive.<br />
<br />
Only someone who never suffered this disease would think a 6 point reduction is meaningful. My pain can fluctuate by + or…tag:prostatitis.ning.com,2010-07-09:2201951:Comment:81202010-07-09T20:18:56.000ZNikhttp://prostatitis.ning.com/profile/NikolasBartley
My pain can fluctuate by + or - 10 in a week easily. A drop of 6 sounds like a joke to me, like another get rich quick scheme to milk prostatitis patients.
My pain can fluctuate by + or - 10 in a week easily. A drop of 6 sounds like a joke to me, like another get rich quick scheme to milk prostatitis patients. My bad on the misread - I dro…tag:prostatitis.ning.com,2010-07-09:2201951:Comment:81192010-07-09T15:04:28.000ZJameshttp://prostatitis.ning.com/profile/James672
My bad on the misread - I drop of 6 points for me is the equivlant relief given by a few aleve...whereas a drop to 6 would be dramatic.<br />
<br />
So - thanks for pointing that out.<br />
<br />
To reduce by only 6 points someone in extreme CP pain is almost meaningless in the long term of healing ....sadly....
My bad on the misread - I drop of 6 points for me is the equivlant relief given by a few aleve...whereas a drop to 6 would be dramatic.<br />
<br />
So - thanks for pointing that out.<br />
<br />
To reduce by only 6 points someone in extreme CP pain is almost meaningless in the long term of healing ....sadly.... Excellent. What you've so wel…tag:prostatitis.ning.com,2010-07-09:2201951:Comment:81182010-07-09T12:51:01.000ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
Excellent. What you've so well captured is that the patient's definition of success is subjective, personal, and very possibly not correlated with either the CPSI change, the CPSI end result, or with the doctor's definition.<br />
<br />
<i><b>Technical note 1:</b></i> The "boot camp" doctor's definition of success was not a drop <b><i>to</i></b> CPS=6. It was a drop <b><i>of</i></b> 6. By that definition, a CPSI change from 37 to 31 is successful treatment.<br />
<br />
<b><i>Technical note 2:</i></b> Given that…
Excellent. What you've so well captured is that the patient's definition of success is subjective, personal, and very possibly not correlated with either the CPSI change, the CPSI end result, or with the doctor's definition.<br />
<br />
<i><b>Technical note 1:</b></i> The "boot camp" doctor's definition of success was not a drop <b><i>to</i></b> CPS=6. It was a drop <b><i>of</i></b> 6. By that definition, a CPSI change from 37 to 31 is successful treatment.<br />
<br />
<b><i>Technical note 2:</i></b> Given that human vocabulary is so rich, we do need some relatively simpler and more standard measure that can help us compare treatment effects. For now, the CPSI seems to be the only real choice, even as it's imperfectly correlated with the subjective reports (as in these threads and in the videos) and even as it obviously incompletely captures prostatitis symptoms (it does not capture back pain, fatigue, palor, and others).