Question for Dr Krongrad - Prostatitis Forum & Social Network2024-03-29T00:12:17Zhttp://prostatitis.ning.com/forum/topics/question-for-dr-krongrad?feed=yes&xn_auth=noI am thinking this is where I…tag:prostatitis.ning.com,2009-05-23:2201951:Comment:48952009-05-23T23:46:30.000ZChristofhttp://prostatitis.ning.com/profile/ChristofCook
I am thinking this is where I am... It is so frustrating to have Medical professionals look at my lean body and overall good physical condition at 49, and always comment on how healthy I am and then seem to disregard any symptom I describe.. My prostate has passed all tests so far (still waiting on PSA), and even though the latest Uro has stated he thinks I have Chronic Non-Bacterial Prostatitis, he is treating me with Cipro and pain meds. This, in spite of having to quit work for a month now,…
I am thinking this is where I am... It is so frustrating to have Medical professionals look at my lean body and overall good physical condition at 49, and always comment on how healthy I am and then seem to disregard any symptom I describe.. My prostate has passed all tests so far (still waiting on PSA), and even though the latest Uro has stated he thinks I have Chronic Non-Bacterial Prostatitis, he is treating me with Cipro and pain meds. This, in spite of having to quit work for a month now, total weight loss of 22 lbs (part I attribute to "the season", no lunches for months) from 147 to 125 and I am 5'10 1/2"... I have had probable prostatitis several times in my years, but never so bad that it was debilitating like the last few months.. Until reading all of this, I never knew it could be that bad, yet everything be so normal. Seems like all they screen for or take seriously is cancer...<br />
I am hoping I can see Dr Krongrad and finally get back my life and the activities I enjoy so much...<br />
<br />
<cite>mike said:</cite><blockquote cite="http://prostatitis.ning.com/forum/topics/question-for-dr-krongrad#2201951Comment4885"><div>Very interesting Dr Krongrad. You, mention the patient had a normal small prostate yet the surgery cured him. This goes to show a normal looking prostate with no inflammation detected can still cause miserable prostatitis. Pelvic floor disorder would have been this guy’s diagnosis in the current leading authority for prostatitis. Years of painfull pt would have been his prescription.I doubt a pt would have cured this guy. Hopefully this man will post after he recovers. Thanks for the interesting post Dr K. So the lesson here is a normal appearing prostate can indeed cause prostatitis symptoms. This is big news and helps me understand my condition.</div>
</blockquote> Thanks for the details of thi…tag:prostatitis.ning.com,2009-05-23:2201951:Comment:48902009-05-23T21:10:04.000ZNikhttp://prostatitis.ning.com/profile/NikolasBartley
Thanks for the details of this case <a href="http://arnonkrongrad.com" target="_blank">Dr Krongrad</a>. It helps me understand how easily this condition is mis-diagnosed. I have been on Lyrica (Progabelin) for the past 2 weeks and have experienced a lot of relief (at times total). I am begining to realise that the inflamation in my prostate is compressing nerves, and that Lyrica seems to be the only <b>"very effective"</b> pain control for my particular case. My GP was willing to try it with…
Thanks for the details of this case <a target="_blank" href="http://arnonkrongrad.com">Dr Krongrad</a>. It helps me understand how easily this condition is mis-diagnosed. I have been on Lyrica (Progabelin) for the past 2 weeks and have experienced a lot of relief (at times total). I am begining to realise that the inflamation in my prostate is compressing nerves, and that Lyrica seems to be the only <b>"very effective"</b> pain control for my particular case. My GP was willing to try it with me, after I showed him evidence of some others having success with it (he said it was "not in the prostatitis box" however). My prostatitis seems to be a type of neuropathic pain that Lyrica seems to make quite a large dent in. Having thought about how this guys case ended up with spine surgery, now does not seem so outrageous. He is not unique, Mike. What…tag:prostatitis.ning.com,2009-05-23:2201951:Comment:48882009-05-23T18:29:38.000ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
He is not unique, Mike. What we are saying is that there is a distinction between histological and clinical prostatitis, which is not really new. The mystery is why many men have the symptoms we refer to as "clinical prostatitis." And why, as in his case as well as such cases as Ike's and Radford's, the symptoms were completely eliminated by prostatectomy.
He is not unique, Mike. What we are saying is that there is a distinction between histological and clinical prostatitis, which is not really new. The mystery is why many men have the symptoms we refer to as "clinical prostatitis." And why, as in his case as well as such cases as Ike's and Radford's, the symptoms were completely eliminated by prostatectomy. Very interesting Dr Krongrad.…tag:prostatitis.ning.com,2009-05-23:2201951:Comment:48852009-05-23T18:10:27.000Zmikehttp://prostatitis.ning.com/profile/mike
Very interesting Dr Krongrad. You, mention the patient had a normal small prostate yet the surgery cured him. This goes to show a normal looking prostate with no inflammation detected can still cause miserable prostatitis. Pelvic floor disorder would have been this guy’s diagnosis in the current leading authority for prostatitis. Years of painfull pt would have been his prescription.I doubt a pt would have cured this guy. Hopefully this man will post after he recovers. Thanks for the…
Very interesting Dr Krongrad. You, mention the patient had a normal small prostate yet the surgery cured him. This goes to show a normal looking prostate with no inflammation detected can still cause miserable prostatitis. Pelvic floor disorder would have been this guy’s diagnosis in the current leading authority for prostatitis. Years of painfull pt would have been his prescription.I doubt a pt would have cured this guy. Hopefully this man will post after he recovers. Thanks for the interesting post Dr K. So the lesson here is a normal appearing prostate can indeed cause prostatitis symptoms. This is big news and helps me understand my condition. In fairness, I think the spin…tag:prostatitis.ning.com,2009-05-23:2201951:Comment:48832009-05-23T16:16:43.000ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
In fairness, I think the spine surgeon was facing a reality in which the prostate is generally not thought to be a source of back pain. It's not that he was avoiding to take it out (not that he is qualified), but that he probably never even thought about the prostate as he was evaluating the man who became my patient. Neither had the patient at that point. The reality is that prostatitis is a condition that is generally very poorly understood and very much under-appreciated, all the more so by…
In fairness, I think the spine surgeon was facing a reality in which the prostate is generally not thought to be a source of back pain. It's not that he was avoiding to take it out (not that he is qualified), but that he probably never even thought about the prostate as he was evaluating the man who became my patient. Neither had the patient at that point. The reality is that prostatitis is a condition that is generally very poorly understood and very much under-appreciated, all the more so by doctors who are not urologists (including spine surgeons). What you are asking is akin to asking mere mortals living in 1492 to accept that the earth is rounded. It's beyond their abilities because it has simply never before been suggested.<br />
<br />
I asked my patient to go back to his spine surgeon and share developments with him. Maybe one day his report will mean that some unlucky man will be spared a needless spine operation.<br />
<br />
In the case we are discussing, the man looked physically normal. His pelvic anatomy looked physically normal. His prostate was normal to the pathologist: no cancer, no inflammation. Yet mere hours post op, lying flat and comfortable for the first time in years, he reported feeling as if a softball had been removed from his rectum. He later reported that his back pain has disappeared. This is a virtually identical report to the one issued by Radford, who likewise was comfortably supine for the first time in years and who said simply "it feels like someone pulled a golf ball out of my ass." Why is this so? I cannot tell you. All I know is that removing the prostate gave them the relief they so desperately wanted. Thanks for the info Dr Krongr…tag:prostatitis.ning.com,2009-05-23:2201951:Comment:48812009-05-23T11:26:51.000ZNikhttp://prostatitis.ning.com/profile/NikolasBartley
Thanks for the info Dr Krongrad. It never ceases to amaze me what lengths some doctors/surgeons go to <b><u>"not to remove a mans prostate"</u></b> unless it will kill him, even if there is a reasonable chance of resolution. What will they do next, send him to a brain surgeon to remove the part of the brain that feels pain? Anything but remove the prostate....!!!! LOL.<br />
<br />
<cite>Arnon Krongrad, MD said:…</cite>
Thanks for the info Dr Krongrad. It never ceases to amaze me what lengths some doctors/surgeons go to <b><u>"not to remove a mans prostate"</u></b> unless it will kill him, even if there is a reasonable chance of resolution. What will they do next, send him to a brain surgeon to remove the part of the brain that feels pain? Anything but remove the prostate....!!!! LOL.<br />
<br />
<cite>Arnon Krongrad, MD said:</cite><blockquote cite="http://prostatitis.ning.com/forum/topics/question-for-dr-krongrad?page=1&commentId=2201951%3AComment%3A4861&x=1#2201951Comment4861"><div>Funny you mention that.<br/> This week I operated on a man with a 6-year history of severe prostatitis. How severe? He wound up having spinal fusion and then a second operation to remove hardware that actually did nothing for him. He was unable to sit, including at the neurosurgeon's office.
The only good news that since his LRP a few days ago he has been symptom free, able to sit and lie down comfortably off Percocet for the first time in years.</div>
</blockquote> Funny you mention that.
This…tag:prostatitis.ning.com,2009-05-23:2201951:Comment:48612009-05-23T01:17:50.000ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
Funny you mention that.<br />
<br />
This week I operated on a man with a 6-year history of severe prostatitis. How severe? He wound up having spinal fusion and then a second operation to remove hardware that actually did nothing for him. He was unable to sit, including at the neurosurgeon's office.<br />
<br />
The only good news that since his LRP a few days ago he has been symptom free, able to sit and lie down comfortably off Percocet for the first time in years.
Funny you mention that.<br />
<br />
This week I operated on a man with a 6-year history of severe prostatitis. How severe? He wound up having spinal fusion and then a second operation to remove hardware that actually did nothing for him. He was unable to sit, including at the neurosurgeon's office.<br />
<br />
The only good news that since his LRP a few days ago he has been symptom free, able to sit and lie down comfortably off Percocet for the first time in years. Great post Nik! you describe…tag:prostatitis.ning.com,2009-05-12:2201951:Comment:48262009-05-12T09:52:45.000Zjeffoshttp://prostatitis.ning.com/profile/jef
Great post Nik! you describe very well the scars of this debilitating condition.<br />
<br />
I hope this study will be able to draw a tendency of effectiveness according to the type of prostatitis (CP II, IIIA, IIIB).<br />
<br />
<cite>Nik said:</cite><blockquote cite="http://prostatitis.ning.com/forum/topics/question-for-dr-krongrad#2201951Comment4824"><div>I am one of the ones seriously thinking about this. I am in the middle of the 1st cycle of IVF at the moment (going to do 3 cycles if needed)with my partner so…</div>
</blockquote>
Great post Nik! you describe very well the scars of this debilitating condition.<br />
<br />
I hope this study will be able to draw a tendency of effectiveness according to the type of prostatitis (CP II, IIIA, IIIB).<br />
<br />
<cite>Nik said:</cite><blockquote cite="http://prostatitis.ning.com/forum/topics/question-for-dr-krongrad#2201951Comment4824"><div>I am one of the ones seriously thinking about this. I am in the middle of the 1st cycle of IVF at the moment (going to do 3 cycles if needed)with my partner so right now its out of the question (prostatitis has made my fertility very low). I have just lost my "sitting down" engineer job due to redundancy, so I am also weighing up looking for a new career which does not involve sitting for long periods-the worst thing for my symptoms.<br/>I am working my way through any last treatments or lifestyle changes before deciding to do LRP. I do really believe its the only "one off cure" instead of paying for a lifetime of symptom reducing treatments, pain control, injections etc. I also believe that in the large majority of cases this is a prostate centered problem, not a pelvic floor muscular problem. This disease is a prison. It plays with your mind, destroys your social life, holidays, career, sleep pattern & ability to sit comfortably. Chances are at some time later in life this could lead to cancer anyway, so you will still end up doing LRP when your older and recovery is slower. Whats the first thing anyone says to you when you arrive for a business meeting or any kind of social function "TAKE A SEAT" or "PLEASE SIT DOWN" or "MAKE YOURSELF COMFORTABLE". After a few years of prostatitis I get fed up with hearing it.......!!!!!</div>
</blockquote> I am one of the ones seriousl…tag:prostatitis.ning.com,2009-05-12:2201951:Comment:48242009-05-12T06:28:27.000ZNikhttp://prostatitis.ning.com/profile/NikolasBartley
I am one of the ones seriously thinking about this. I am in the middle of the 1st cycle of IVF at the moment (going to do 3 cycles if needed)with my partner so right now its out of the question (prostatitis has made my fertility very low). I have just lost my "sitting down" engineer job due to redundancy, so I am also weighing up looking for a new career which does not involve sitting for long periods-the worst thing for my symptoms.<br />
I am working my way through any last treatments or lifestyle…
I am one of the ones seriously thinking about this. I am in the middle of the 1st cycle of IVF at the moment (going to do 3 cycles if needed)with my partner so right now its out of the question (prostatitis has made my fertility very low). I have just lost my "sitting down" engineer job due to redundancy, so I am also weighing up looking for a new career which does not involve sitting for long periods-the worst thing for my symptoms.<br />
I am working my way through any last treatments or lifestyle changes before deciding to do LRP. I do really believe its the only "one off cure" instead of paying for a lifetime of symptom reducing treatments, pain control, injections etc. I also believe that in the large majority of cases this is a prostate centered problem, not a pelvic floor muscular problem. This disease is a prison. It plays with your mind, destroys your social life, holidays, career, sleep pattern & ability to sit comfortably. Chances are at some time later in life this could lead to cancer anyway, so you will still end up doing LRP when your older and recovery is slower. Whats the first thing anyone says to you when you arrive for a business meeting or any kind of social function "TAKE A SEAT" or "PLEASE SIT DOWN" or "MAKE YOURSELF COMFORTABLE". After a few years of prostatitis I get fed up with hearing it.......!!!!! Hey,
I think hopefully once…tag:prostatitis.ning.com,2009-05-11:2201951:Comment:48212009-05-11T23:46:54.000ZKay Hhttp://prostatitis.ning.com/profile/KayH
Hey,<br />
<br />
I think hopefully once the study is published it will give sufferers another avenue of treatment (actually a cure) for the condition. I also think once people have tried the traditional treatments that do not work for many sufferers a lot of people actually do and would consider having surgery. Thats just what I think.
Hey,<br />
<br />
I think hopefully once the study is published it will give sufferers another avenue of treatment (actually a cure) for the condition. I also think once people have tried the traditional treatments that do not work for many sufferers a lot of people actually do and would consider having surgery. Thats just what I think.