Top 5 reasons why urologists refuse to treat chronic prostatitis patients - Prostatitis Forum & Social Network2024-03-29T11:32:52Zhttp://prostatitis.ning.com/forum/topics/top-5-reasons-why-urologists?commentId=2201951%3AComment%3A44202&xg_source=activity&feed=yes&xn_auth=noif I had money I would be wil…tag:prostatitis.ning.com,2013-12-02:2201951:Comment:442852013-12-02T03:03:50.335ZAdam .http://prostatitis.ning.com/profile/Adam
<p>if I had money I would be willing to put all of it on one thing: all prostatitis are bacterial.</p>
<p>if I had money I would be willing to put all of it on one thing: all prostatitis are bacterial.</p> and I want to add more: it wo…tag:prostatitis.ning.com,2013-12-02:2201951:Comment:442022013-12-02T03:03:14.730ZAdam .http://prostatitis.ning.com/profile/Adam
<p>and I want to add more: it would require thinking, something they all seem to be incapable of. culture from semen is the best, yet all seem to flatout refuse this, with a few exceptions. Another issue, which you all should push for, is anaerobic cultures. anerobes are difficult to culture, but they are the major cause of bacterial vaginosis in females. if you have any foul smell of urine or semen, or even the glans of the penis, that is an anaerobic infection.</p>
<p>and I want to add more: it would require thinking, something they all seem to be incapable of. culture from semen is the best, yet all seem to flatout refuse this, with a few exceptions. Another issue, which you all should push for, is anaerobic cultures. anerobes are difficult to culture, but they are the major cause of bacterial vaginosis in females. if you have any foul smell of urine or semen, or even the glans of the penis, that is an anaerobic infection.</p> I have suffered with prostiti…tag:prostatitis.ning.com,2012-12-05:2201951:Comment:348702012-12-05T14:00:28.865ZTide Winshttp://prostatitis.ning.com/profile/GregMaddox
<p>I have suffered with prostititis for over 4 years. Does anyone know of a good protititis treating MD in the NE Tenn area?</p>
<p>I have suffered with prostititis for over 4 years. Does anyone know of a good protititis treating MD in the NE Tenn area?</p> Blake, you put the videos rel…tag:prostatitis.ning.com,2012-09-10:2201951:Comment:337512012-09-10T22:36:26.661ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
<p>Blake, you put the videos relating to biofilms in the <a href="http://prostatitis.ning.com/group/causes-of-prostatitis" target="_self">Risk Factors and Causes</a> group: <a href="http://prostatitis.ning.com/group/causes-of-prostatitis/forum/topics/biofilm-link-to-chronic-prostatits-article-video" target="_self">click here</a>.</p>
<p>Blake, you put the videos relating to biofilms in the <a href="http://prostatitis.ning.com/group/causes-of-prostatitis" target="_self">Risk Factors and Causes</a> group: <a href="http://prostatitis.ning.com/group/causes-of-prostatitis/forum/topics/biofilm-link-to-chronic-prostatits-article-video" target="_self">click here</a>.</p> In response to chris and dr k…tag:prostatitis.ning.com,2012-09-09:2201951:Comment:338432012-09-09T20:57:03.930Zmr parkhttp://prostatitis.ning.com/profile/mrpark
<p>In response to chris and dr kongrad over this whole post about urologists I agree with chris that so far most of my doctors have not treated my condition with any good care or proper effort and the only urologiust I saw worsened my condition severely but there are good doctors that don't just do it for the money and dr k is right you have to work with those doctors and be polite its wrong to say doctor kongrad wants to cut out prostates he is helping people in suffering I don't like that…</p>
<p>In response to chris and dr kongrad over this whole post about urologists I agree with chris that so far most of my doctors have not treated my condition with any good care or proper effort and the only urologiust I saw worsened my condition severely but there are good doctors that don't just do it for the money and dr k is right you have to work with those doctors and be polite its wrong to say doctor kongrad wants to cut out prostates he is helping people in suffering I don't like that statement. But I think like doctor Kongrad said we need to work together to get noticed and again chris you are right this disorder could be cured a lot more but not while its ignored therefore we need to get together and make a much better protocal based on scientific facts and treatments that do work with better tests and dignosis procedures .I feel a lot of work that needs to be done is more common sense based than anything people should not get given drugs before they know what there physical problem is and we as people who understand whats happening should organise what we think would of worked best with doctors so the next man dosent suffer the same! I will be writing my own case study based on what I believe happened in my case and how treatment effected me and how I think things should be changed but other people will need to agree on this! Doctors and patients for change to happen no one person can treat everyone we have to help the people that don't know to understand better! Allthough many are ignorrant including my own father who I now will not speak to as he has allways been that way and this time he really got to me, We need to stay calm to perswade enough to listen for change to happen I think that what the doctor is saying this is the most important step I would say for now for improving what we can where we know we can get it! .</p> Several separate issues.
I…tag:prostatitis.ning.com,2012-09-09:2201951:Comment:338422012-09-09T19:55:19.210ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
<p>Several separate issues.</p>
<p> </p>
<p>I do not take responsibility for another doctor just as you do not responsible for another patient. Sure, some doctors have been disrespectful, just as some patients have been disrespectful. None of this substantiates a conspiratorial argument that all doctors want to keep patients in pain or that all patients are obnoxious.</p>
<p> </p>
<p>This is not about being overtly nice, but about moving beyond the repeated statement of the problem that not all…</p>
<p>Several separate issues.</p>
<p> </p>
<p>I do not take responsibility for another doctor just as you do not responsible for another patient. Sure, some doctors have been disrespectful, just as some patients have been disrespectful. None of this substantiates a conspiratorial argument that all doctors want to keep patients in pain or that all patients are obnoxious.</p>
<p> </p>
<p>This is not about being overtly nice, but about moving beyond the repeated statement of the problem that not all physician-patient interactions are happy. Obviously that is true. This is about illness and the limitations of current knowledge. So as to the culture of advocacies, there are numerous examples. Either way, since advocacies are often led by or symbolized by people who are not afflicted, e.g. Elizabeth Taylor for HIV, one might think that a chronic prostatitis patient's wife or other might jump in. And if one thinks there is a stigma associated with prostatitis, just think how stigmatized was HIV. There is a way forward, but the first step is to see it.</p>
<p> </p>
<p>For what it's worth, one missing ingredient has been a forum in which patients could constructively and openly engage with each other, which means putting aside sarcasm and sweeping condemnations long enough to look at what will drive progress: data, funding sources, funding priorities ...</p> I believe the answer to your…tag:prostatitis.ning.com,2012-09-09:2201951:Comment:337402012-09-09T19:22:58.959ZJameshttp://prostatitis.ning.com/profile/James672
<p>I believe the answer to your question is simply this:</p>
<p>Men do not die of prostatitis (99% of them at least).</p>
<p> </p>
<p>If people do not die of the disease - and if the disease is hidden (people do not see it - like they see MS or parkinsons) - there is no urgnecy to do anything about it.</p>
<p> </p>
<p>I can say that when my symptoms are at their height - the last thing in the world I would want to do is start an advocacy group.</p>
<p> </p>
<p>Most of those things have been…</p>
<p>I believe the answer to your question is simply this:</p>
<p>Men do not die of prostatitis (99% of them at least).</p>
<p> </p>
<p>If people do not die of the disease - and if the disease is hidden (people do not see it - like they see MS or parkinsons) - there is no urgnecy to do anything about it.</p>
<p> </p>
<p>I can say that when my symptoms are at their height - the last thing in the world I would want to do is start an advocacy group.</p>
<p> </p>
<p>Most of those things have been started or pushed by the surviving family/friends of those that dies of breast cancer or aids or similar maladies.</p>
<p> </p>
<p>Since we don't die - we just hide in our homes and rot........and I beleive that the medical community for the most part would like to keep it that way as we are a low profit diseasethat most doctors can not profit enough off of non-surgical treaments to make it worth their while at thier practice.</p>
<p> </p>
<p> I in no way mean to be disrespectul to you - but too many of your peers have treated too many of us too badly for us to be overtly nice about the topic......</p>
<p> </p>
<p>I do appreciate that you offer a sollution - thank you for that - and I will likely come to you for it once my pain can not be controlled through other means....</p> That was not meant as a refut…tag:prostatitis.ning.com,2012-09-09:2201951:Comment:336532012-09-09T19:05:26.870ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
<p>That was not meant as a refutation and/or acknowledgement and/or defense of anything. Surely it was not a defense of not trying to help a patient who has walked in the door (nor of <em>pretending</em> to try to help). And agreed, if a doctor's intention is to not try to help, then this should be communicated to a would-be patient in advance of an appointment.</p>
<p> </p>
<p>That said, the only apparent path forward is a focus shifted to constructive pathways to bedside enlightenment. We…</p>
<p>That was not meant as a refutation and/or acknowledgement and/or defense of anything. Surely it was not a defense of not trying to help a patient who has walked in the door (nor of <em>pretending</em> to try to help). And agreed, if a doctor's intention is to not try to help, then this should be communicated to a would-be patient in advance of an appointment.</p>
<p> </p>
<p>That said, the only apparent path forward is a focus shifted to constructive pathways to bedside enlightenment. We need a much better understanding of why patients have the symptoms they do and we need much better remedies than currently available. It is an opinion based upon observations about the breast cancer and HIV communities that the chronic prostatitis patient community would do itself good by first understanding that in many cases, the available remedies simply do not work -- which in itself leads to patient and professional frustration at the bedside -- and second organizing and advocating for change, which means research, which means dedicated resources.</p>
<p> </p>
<p>Given the numbers afflicted, it remains a mystery as to why men with chronic prostatitis have no effective representative advocacy organization. Is this how it should be? Twenty years from now, do we want more threads like this or do we want better treatments? If the latter, which steps are necessary? Do patients have a role in pushing for those steps?</p> Your reply - while logical an…tag:prostatitis.ning.com,2012-09-09:2201951:Comment:338412012-09-09T18:45:31.436ZJameshttp://prostatitis.ning.com/profile/James672
<p>Your reply - while logical and valid - does little to acknowledge that there are many in your profesion with neither the skill to identify proper treatment protocols that work for many men or for offering referels to the few doctors that actually treat this illness with any measure of success - I went through half a dozen urologists until I found one that would work with me - and "experiment" - to find a treatment that actually provided some relief (in my case - injections provide some…</p>
<p>Your reply - while logical and valid - does little to acknowledge that there are many in your profesion with neither the skill to identify proper treatment protocols that work for many men or for offering referels to the few doctors that actually treat this illness with any measure of success - I went through half a dozen urologists until I found one that would work with me - and "experiment" - to find a treatment that actually provided some relief (in my case - injections provide some durable relief for long periods).</p>
<p> </p>
<p>It is good to know a "final" option like surgery from Dr K is available when all else fails - but a better answer is a first line multi-modal approach using various drugs, injections, massage, etc - until you find something that may provide relief for you - then when/if nothing works anymore - we have Dr K to assist us.</p>
<p> </p>
<p>I find it unfortunate that you defend the many practioners in your profesion that do not even pretend to try to help patients with this ailment - they should just put a sign on their door that says "no prostatitis patient accepted" and save us the humiliation and demeaning treatment....</p>
<p> </p> The knowledge base for elimin…tag:prostatitis.ning.com,2012-09-09:2201951:Comment:336522012-09-09T15:31:37.936ZArnon Krongrad, MDhttp://prostatitis.ning.com/profile/krongrad
<p>The knowledge base for eliminating the symptoms of chronic prostatitis is incomplete. In this setting, the best of efforts of the even most skilled, experienced, and motivated specialist may in many individual cases come up short of the clinical objective. When this is the clear reality, to condemn an entire profession is to obscure the <em>only</em> real path forward: research. That is the path taken in the setting of other illnesses, ranging from breast cancer to HIV infection.…</p>
<p>The knowledge base for eliminating the symptoms of chronic prostatitis is incomplete. In this setting, the best of efforts of the even most skilled, experienced, and motivated specialist may in many individual cases come up short of the clinical objective. When this is the clear reality, to condemn an entire profession is to obscure the <em>only</em> real path forward: research. That is the path taken in the setting of other illnesses, ranging from breast cancer to HIV infection. Perhaps energy can be more constructively directed to forming a public advocacy group for chronic prostatitis, so as to seek to direct more resources to the development of more knowledge that can make a real difference at the bedside.</p>