Cant continue like this.... - Prostatitis Forum & Social Network2024-03-28T18:03:35Zhttps://prostatitis.ning.com/forum/topics/cant-continue-like-this?commentId=2201951%3AComment%3A4941&feed=yes&xn_auth=noI am also impressed by the fo…tag:prostatitis.ning.com,2009-09-06:2201951:Comment:64102009-09-06T12:44:32.000ZMikehttps://prostatitis.ning.com/profile/Bill41
I am also impressed by the follow up and commitment demonstrated by Dr Krongrad and his team. For the first month after my surgery I was contacted by phone or email nearly daily (sometimes several times in the same day) to see how I was doing and answer my questions.<br />
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I have never experienced this kind of focus or commitment from any physician in my entire life.
I am also impressed by the follow up and commitment demonstrated by Dr Krongrad and his team. For the first month after my surgery I was contacted by phone or email nearly daily (sometimes several times in the same day) to see how I was doing and answer my questions.<br />
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I have never experienced this kind of focus or commitment from any physician in my entire life. I guess I cant edit the one I…tag:prostatitis.ning.com,2009-09-05:2201951:Comment:63412009-09-05T18:29:58.000ZChristofhttps://prostatitis.ning.com/profile/ChristofCook
I guess I cant edit the one I already posted, but will try to make sure the long quotes are not added... Good suggestion..<br />
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The symptoms I have been experiencing since my prostatectomy are not related to the prostate, although my prostate caused me serious grief for years, such as testicle pain, low back pain, and pain below my umbilicus.. But I lost 30 lbs since February, and had severe nausea and loss of appetite. Also having severe arrhythmias that have continued after my prostate was…
I guess I cant edit the one I already posted, but will try to make sure the long quotes are not added... Good suggestion..<br />
<br />
The symptoms I have been experiencing since my prostatectomy are not related to the prostate, although my prostate caused me serious grief for years, such as testicle pain, low back pain, and pain below my umbilicus.. But I lost 30 lbs since February, and had severe nausea and loss of appetite. Also having severe arrhythmias that have continued after my prostate was removed, most likely caused by a tumor that was found when I had a CT scan of my abdomen.<br />
Although just a theory of mine, I feel I had chronic prostatitis for over 15 yrs, but then combined with this secondary problem, it all but wiped me out, literally... Now it is so nice to have a stream like a 20 yr old, no testicle pain, no more low abdominal pain, and best of all, it no longer feels like I am peeing through a coffee stirrer!!<br />
I am so glad I had the surgery, and Dr. Krongrad, Hope, and Ruth, treat patients like we used to see 30 yrs ago.. They have continued to call and email me to check on how I am doing, which by the way, not one of my other doctors have done even once.. Not putting them down, but rather stating how nice it is to have that kind of follow up, and compassion. An administrative suggestion:…tag:prostatitis.ning.com,2009-09-04:2201951:Comment:63242009-09-04T19:25:20.000ZArnon Krongrad, MDhttps://prostatitis.ning.com/profile/krongrad
An administrative suggestion:<br />
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You may want to delete all the italicized textin the reply boxes. Our platform has a nasty habit of copying everything you are replying to, which makes the thread terribly redundant and harder to navigate.<br />
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Christoff's case shows that prostatitis can co-exist with other conditions. I will let him elaborate on the "other symptoms" and would encourage readers to distinguish between what he is reporting that <b><i>is</i></b> and <b><i>is not</i></b> relevant to his…
An administrative suggestion:<br />
<br />
You may want to delete all the italicized textin the reply boxes. Our platform has a nasty habit of copying everything you are replying to, which makes the thread terribly redundant and harder to navigate.<br />
<br />
Christoff's case shows that prostatitis can co-exist with other conditions. I will let him elaborate on the "other symptoms" and would encourage readers to distinguish between what he is reporting that <b><i>is</i></b> and <b><i>is not</i></b> relevant to his chronic prostatitis.<br />
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AK Hi Christof,What kind of bad…tag:prostatitis.ning.com,2009-09-04:2201951:Comment:63212009-09-04T15:48:17.000ZMarkhttps://prostatitis.ning.com/profile/Mark
<p>Hi Christof,<br/><br/>What kind of bad problems are you still experiencing?</p>
<p>Hi Christof,<br/><br/>What kind of bad problems are you still experiencing?</p> Hey Mike.....What are your sy…tag:prostatitis.ning.com,2009-09-03:2201951:Comment:63012009-09-03T14:22:47.000ZChristofhttps://prostatitis.ning.com/profile/ChristofCook
<p>Hey Mike.....<br></br>What are your symptoms, and have you been diagnosed with Chronic Prostatitis?<br></br>Seems that with me, my prostate was a problem, but just one... I had many of my symptoms go away after the surgery with Dr Krongrad, but unfortunately I still have other bad symptoms that may be related to a tumor on my adrenal gland which was found after I had the surgery and continued to go downhill... I cant describe the thrill I get every time I void now, having a stream that I have not…</p>
<p>Hey Mike.....<br/>What are your symptoms, and have you been diagnosed with Chronic Prostatitis?<br/>Seems that with me, my prostate was a problem, but just one... I had many of my symptoms go away after the surgery with Dr Krongrad, but unfortunately I still have other bad symptoms that may be related to a tumor on my adrenal gland which was found after I had the surgery and continued to go downhill... I cant describe the thrill I get every time I void now, having a stream that I have not had since my 20's, and no severe pain/pressure when voiding.. I also no longer have the severe periumbilical pain, and the testicle pain is gone..<br/>What is weird about the prostate, mine was normal in all aspects after removal.. So why was it causing a problem? That is why Dr Krongrad is doing this study I think, because we seem to know so little about the gland when it comes to symptoms..<br/>Welcome to the thread, and let us know more about your case...</p> Wow...this is my first time i…tag:prostatitis.ning.com,2009-09-02:2201951:Comment:62882009-09-02T17:09:13.000ZMike Mullinhttps://prostatitis.ning.com/profile/MikeMullin
Wow...this is my first time in a forum, and I am so glad I found this site. My situation is similar to Christophs, except that I have relatively no urinary pain or ejaculation pain. My Urologist, who I have seen twice now, was very dismissive, and is pushing me in the direction of having a test to see if I am eligible for a tube up my urethra to burn away part of my prostae...which 1. scares me and 2. seems like it is usually a treatment for an enlarged prostate, not a chronically inflammed…
Wow...this is my first time in a forum, and I am so glad I found this site. My situation is similar to Christophs, except that I have relatively no urinary pain or ejaculation pain. My Urologist, who I have seen twice now, was very dismissive, and is pushing me in the direction of having a test to see if I am eligible for a tube up my urethra to burn away part of my prostae...which 1. scares me and 2. seems like it is usually a treatment for an enlarged prostate, not a chronically inflammed prostate ( if forget what the procedure is called). It seems that many of the stories are similar, but not exactly the same symptoms. For example, I do not have the pain around my navel, and it does not hurt when I walk or jog. Does anyone have any suggestions for what I should do? Is that treatment effective? Dangerous? I don't mind becoming sterile, I have plenty of kids, but I certainly do not want to become impotent! Thank you all for your replie…tag:prostatitis.ning.com,2009-05-26:2201951:Comment:49612009-05-26T20:20:48.000ZChristofhttps://prostatitis.ning.com/profile/ChristofCook
Thank you all for your replies! Net was down all weekend, so I am just now getting back.. Called Dr Krongrad's office and will get a call-back from Ruth..<br />
Found out PSA is well within normal limits (no surprise to me), so this reinforces my belief that I either have something wrong with the bladder and nerve innervation or it IS the calcifications and chronic severe prostatitis...<br />
I will keep everyone posted here as to what comes next, I feel right now that I simply cant wait to have that damn…
Thank you all for your replies! Net was down all weekend, so I am just now getting back.. Called Dr Krongrad's office and will get a call-back from Ruth..<br />
Found out PSA is well within normal limits (no surprise to me), so this reinforces my belief that I either have something wrong with the bladder and nerve innervation or it IS the calcifications and chronic severe prostatitis...<br />
I will keep everyone posted here as to what comes next, I feel right now that I simply cant wait to have that damn thing out, no matter what... I was up for 7 hrs today without anything but a Darvocet, and am right back to the hunch-over, want to lie down condition that is the norm for me anymore... Same damn knot in my sub-umbilical area and left testicle pain, and that "golfball" in the rectum feeling... A little nauseated too, ala "narded"...<br />
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Thanks again for the warm welcome, and the ability to talk about this so easily with you all... I'm glad that there is finally getting to be groups/sites like this that bring to light that female problems are not the only problems in the world, that men sometimes can have problems "down there" too...<br />
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Christof Hi Christof;
Your story is s…tag:prostatitis.ning.com,2009-05-26:2201951:Comment:49412009-05-26T10:51:59.000ZCHARLEShttps://prostatitis.ning.com/profile/IKE
Hi Christof;<br />
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Your story is somehow similar. Try to read my paper titled "Free at last" and called Dr. Krongrad as soon as possible.
Hi Christof;<br />
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Your story is somehow similar. Try to read my paper titled "Free at last" and called Dr. Krongrad as soon as possible. Hi Christoff,
You've got it…tag:prostatitis.ning.com,2009-05-25:2201951:Comment:49212009-05-25T07:34:06.000ZJonhttps://prostatitis.ning.com/profile/Jon
Hi Christoff,<br />
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You've got it absolutely right about how ignorant doctors can be about the debilitating nature of the pain. I've been suffering from chronic epydidymitis/prostatitis for more than two years now. The epididymitis part of this means that every time I put my foot on the ground it feels like someone just kicked me in the balls. At its worst I could hardly walk, although I'm glad to say that it's improved somewhat. Recently my urologist advised me that blood circulation was important…
Hi Christoff,<br />
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You've got it absolutely right about how ignorant doctors can be about the debilitating nature of the pain. I've been suffering from chronic epydidymitis/prostatitis for more than two years now. The epididymitis part of this means that every time I put my foot on the ground it feels like someone just kicked me in the balls. At its worst I could hardly walk, although I'm glad to say that it's improved somewhat. Recently my urologist advised me that blood circulation was important for this condition. He recommended that I take up jogging to help circulate the blood. I can't tell you how discouraging this was. I suddenly realised that this guy had no awareness at all of the pain I was experiencing and had never done so in all the time he had been treating me. If I could bloody well jog, I wouldn't be sitting in his office. I was tempted to say, 'Okay, let's see how far you can jog while I hit you in the crotch with a baseball bat at every step.'<br />
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I know that everyone on this forum has probably experienced something similar. This condition is bad enough without the awareness that even the so-called experts have no idea what you're going through and have no desire to find out. [I'm excepting Dr Krongrad from this assessment, of course!] Hi Christof,
First of all we…tag:prostatitis.ning.com,2009-05-24:2201951:Comment:49152009-05-24T05:15:49.000ZArnon Krongrad, MDhttps://prostatitis.ning.com/profile/krongrad
Hi Christof,<br />
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First of all welcome to the Prostatitis social network. It's small but as you will soon see it's quite open and constructive. Many of its members have acquired knowledge from various sources that they will share with you.<br />
<br />
Secondly, as you surely know, prostatitis is a somewhat nonspecific term that describes a range of symptoms. Its causes are often elusive as are the treatments. For this reason, we aim to share what we have gathered. To the extent possible, we aim to bring data…
Hi Christof,<br />
<br />
First of all welcome to the Prostatitis social network. It's small but as you will soon see it's quite open and constructive. Many of its members have acquired knowledge from various sources that they will share with you.<br />
<br />
Secondly, as you surely know, prostatitis is a somewhat nonspecific term that describes a range of symptoms. Its causes are often elusive as are the treatments. For this reason, we aim to share what we have gathered. To the extent possible, we aim to bring data to support various opinions and interpretations. Some are posted on the left of the home page in the form of papers.<br />
<br />
Thirdly, you may do well to make direct contact with some of the members. You can do this by posting comments on their individual pages. You may want to start with <a target="_blank" href="http://prostatitis.ning.com/profile/IKE">Ike</a>, who like you is a practicing RN, <a target="_blank" href="http://prostatitis.ning.com/profile/Jeremy">Jeremy</a>, and some of the others..<br />
<br />
Look around and feel free to holler if you need help navigating.<br />
<br />
Arnon