Living in Hell. - Prostatitis Forum & Social Network2024-03-29T11:31:30Zhttps://prostatitis.ning.com/forum/topics/living-in-hell?commentId=2201951%3AComment%3A32280&xg_source=activity&feed=yes&xn_auth=noThanks for that Dave.
I am go…tag:prostatitis.ning.com,2012-04-30:2201951:Comment:327232012-04-30T16:28:46.759ZChris Andersonhttps://prostatitis.ning.com/profile/ChrisAnderson
<p>Thanks for that Dave.</p>
<p>I am going to see my gp this week so I will mention it to him.</p>
<p>The worst feeling I get is the fullness feeling if I dont ejaculate every 24 hours.I am finding it very hard to cope with that.</p>
<p>It ony used to be about a week until about a year or so ago.</p>
<p>Thanks for that Dave.</p>
<p>I am going to see my gp this week so I will mention it to him.</p>
<p>The worst feeling I get is the fullness feeling if I dont ejaculate every 24 hours.I am finding it very hard to cope with that.</p>
<p>It ony used to be about a week until about a year or so ago.</p> Well if things don't improve…tag:prostatitis.ning.com,2012-04-27:2201951:Comment:325032012-04-27T20:03:37.435ZDavehttps://prostatitis.ning.com/profile/Dave
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<p>Well if things don't improve, speak to your GP about Lyrica (pregabalin) - this is generally favoured over gabapentin by many doctors because the side effects are less severe, apparently. Care has to be taken still, due to the way these things work, and without a doubt there are side effects - some people put on weight but the biggest one I've found personally is I can only drink a very small amount of alcohol and of specific types (it does advise not to, but hey); I start getting…</p>
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<p>Well if things don't improve, speak to your GP about Lyrica (pregabalin) - this is generally favoured over gabapentin by many doctors because the side effects are less severe, apparently. Care has to be taken still, due to the way these things work, and without a doubt there are side effects - some people put on weight but the biggest one I've found personally is I can only drink a very small amount of alcohol and of specific types (it does advise not to, but hey); I start getting a nasty hangover feeling very rapidly after about 2 pints of cider, like it was the morning after many more. Starting, stopping or changing doses has to be done very slowly too, over days or weeks. It is not a fix-all by any means, but for me it reduced symptoms by say 50%. I still have to resort to antibiotics every so often.</p> Hi Dave
Thanks for your reply…tag:prostatitis.ning.com,2012-04-26:2201951:Comment:326192012-04-26T17:34:06.667ZChris Andersonhttps://prostatitis.ning.com/profile/ChrisAnderson
<div class="xg_user_generated"><p>Hi Dave</p>
<p>Thanks for your reply .I came across those those clinics over the last year ago.</p>
<p>It is as if they read it all from a text book .I am taking a few herbal medications that help a little.</p>
<p>I have just started turmeric capsules and they seem to help with the inflammation.You know I have had this since 1996 and I never took anything for it after a year of having it .I just excepted it and carried on with my life until a year ago, things…</p>
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<div class="xg_user_generated"><p>Hi Dave</p>
<p>Thanks for your reply .I came across those those clinics over the last year ago.</p>
<p>It is as if they read it all from a text book .I am taking a few herbal medications that help a little.</p>
<p>I have just started turmeric capsules and they seem to help with the inflammation.You know I have had this since 1996 and I never took anything for it after a year of having it .I just excepted it and carried on with my life until a year ago, things just got bad.</p>
<p>I have not started the gabapentin.Just to many side effects.</p>
</div> No harm in trying them, excep…tag:prostatitis.ning.com,2012-04-26:2201951:Comment:325012012-04-26T10:24:31.445ZDavehttps://prostatitis.ning.com/profile/Dave
<p>No harm in trying them, except maybe financial, but there are in fact many places that say they treat chronic prostatitis.... but that doesn't necessarily mean they will be giving any different information from your local hospital. I was seen at UCLH in London which my GP said should be regarded as one of the top places to go and by the team where the consultant has been described to me as the best expert in prostatitis in the UK. However the advice was no different to anywhere else... i.e.…</p>
<p>No harm in trying them, except maybe financial, but there are in fact many places that say they treat chronic prostatitis.... but that doesn't necessarily mean they will be giving any different information from your local hospital. I was seen at UCLH in London which my GP said should be regarded as one of the top places to go and by the team where the consultant has been described to me as the best expert in prostatitis in the UK. However the advice was no different to anywhere else... i.e. we don't have any answers, so take antibiotics and keep fingers crossed. The thing that seemed to happen quicker than elsewhere is things like MRI scans. (I should add I didn't actually get to see the consultant himself, just one of his people; this was on the NHS). The difference between a specialist centre and the local hospital is that you can have slightly more confidence that they know what they are talking about.</p>
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<p>The Birmingham link above is interesting... in their section on prostatitis, which says (in relatively standard text) to treat with antibiotics, alpha blockers etc. they also include this text:</p>
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<p><em>If no treatment seems to work, which is occasionally the case, prostatitis can be a difficult condition to manage. However most if not all cases eventually “burn themselves out”. Symptoms can continue for a long time, sometimes years, but almost always improve spontaneously eventually. It symptoms do become a long term problem it is important to remember that prostatitis is not a serious or life threatening condition.</em></p>
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<p>I wish my body would realise it should improve spontaneously. It is also a bit concerning where they say it is not serious... maybe its not going to directly kill you, but if it f**ks my life up then to me that is serious!</p>
<p>Interesting that their view is that prostatectomy is never the solution.</p>
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<p>Chris - how are you doing now - any benefit from the Gabapentin? </p> Nick, how long did it take fo…tag:prostatitis.ning.com,2012-02-16:2201951:Comment:320022012-02-16T21:28:55.792ZDennis Taylorhttps://prostatitis.ning.com/profile/DennisTaylor
<p>Nick, how long did it take for most of the pain go away. Seems, talking to some of the guys, it's around 8 weeks post-op. I'm at 6.</p>
<p>Thanks.</p>
<p>Nick, how long did it take for most of the pain go away. Seems, talking to some of the guys, it's around 8 weeks post-op. I'm at 6.</p>
<p>Thanks.</p> Good to hear that things are…tag:prostatitis.ning.com,2012-02-10:2201951:Comment:321982012-02-10T05:49:55.427ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Good to hear that things are going well, Nik. I'm sure that will be encouraging to others who are thinking about the operation.</p>
<p>Good to hear that things are going well, Nik. I'm sure that will be encouraging to others who are thinking about the operation.</p> I forgot to mention in additi…tag:prostatitis.ning.com,2012-02-09:2201951:Comment:322802012-02-09T08:38:38.503ZNikhttps://prostatitis.ning.com/profile/NikolasBartley
<p>I forgot to mention in addition to above that I no longer have to worry about the 70% chance of prostate cancer occurring at a later date as Dr K & E have been finding in their prostatitis patients. Coincidence? It doesn't add up in my logic. Maybe if it was 30% but 70% sounds way to high to me. The chances are if I had left this to run its course I may have ended up having to do the surgery anyway but older and maybe too late for nerve sparing, or even worse too late for surgery.</p>
<p>I forgot to mention in addition to above that I no longer have to worry about the 70% chance of prostate cancer occurring at a later date as Dr K & E have been finding in their prostatitis patients. Coincidence? It doesn't add up in my logic. Maybe if it was 30% but 70% sounds way to high to me. The chances are if I had left this to run its course I may have ended up having to do the surgery anyway but older and maybe too late for nerve sparing, or even worse too late for surgery.</p> Hi Jon.
Overall doing very w…tag:prostatitis.ning.com,2012-02-09:2201951:Comment:321962012-02-09T08:25:56.588ZNikhttps://prostatitis.ning.com/profile/NikolasBartley
<p>Hi Jon.</p>
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<p>Overall doing very well, no regrets about the surgery. The debilitating pain has gone. There is some pelvic discomfort left following orgasm for a day or 2 but nothing that ever leaves me lying in bed for hours/days like before the surgery. Totally continent, erections even without pills have recently become good quality-just take a little longer to achieve than before-but nothing significant (still only 8 months out). Orgasms are still exactly the same except for…</p>
<p>Hi Jon.</p>
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<p>Overall doing very well, no regrets about the surgery. The debilitating pain has gone. There is some pelvic discomfort left following orgasm for a day or 2 but nothing that ever leaves me lying in bed for hours/days like before the surgery. Totally continent, erections even without pills have recently become good quality-just take a little longer to achieve than before-but nothing significant (still only 8 months out). Orgasms are still exactly the same except for reduced ejaculate. Now I ejaculate cowpers fluid only-better than nothing.! In the beginning I would also loose some urine during masturbation orgasm but strangely enough not during sex orgasm. I can only theorise that the extra pressure from the vagina was enough to prevent this. Now however, even upon manual stimulation I can prevent this happening during orgasm. You learn to control your sphincter in a different manner even during orgasm.</p>
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<p>I NEVER get night sweats anymore like before.</p>
<p>I have normal energy levels now (for someone looking after kids anyway LOL).</p>
<p>I have no penile shrinkage that some report after surgery.</p>
<p>I lost 5kg since stopping the Lyrica (which was a nightmare to stop by the way, had to gradually ween off-I thought Tramadol would be the problem but I never found Tramadol caused any dependency)</p>
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<p>I would never have been capable of looking after my twin girls had I not done the surgery so for me it was the right decision. Its not an easy decision to make however and is definitely last resort. The recovery process is mentally and emotionally challenging.</p> There are many surgeons in th…tag:prostatitis.ning.com,2012-02-08:2201951:Comment:322742012-02-08T00:26:42.997ZJonhttps://prostatitis.ning.com/profile/Jon
<p>There are many surgeons in the UK doing LRP, but only for cancer patients. As far as I know, Chris Eden is the only one who will do it for prostatitis, and you have to pay, of course; it's not on the U.K. National Health Service for prostatitis. My understanding is that his success rate is high, but especially one member of this forum had a bad result. Another member, Nick, had a really good result initially, but hasn't updated for a while. I wonder how he's getting on? Nick! Phone home! </p>
<p>There are many surgeons in the UK doing LRP, but only for cancer patients. As far as I know, Chris Eden is the only one who will do it for prostatitis, and you have to pay, of course; it's not on the U.K. National Health Service for prostatitis. My understanding is that his success rate is high, but especially one member of this forum had a bad result. Another member, Nick, had a really good result initially, but hasn't updated for a while. I wonder how he's getting on? Nick! Phone home! </p> My gp prescribed me Gabapent…tag:prostatitis.ning.com,2012-02-07:2201951:Comment:321892012-02-07T19:58:08.882ZChris Andersonhttps://prostatitis.ning.com/profile/ChrisAnderson
<p>My gp prescribed me Gabapentin yesterday I am going to give that a try.Thanks</p>
<p> </p>
<p>My gp prescribed me Gabapentin yesterday I am going to give that a try.Thanks</p>
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