Prostatitis Forum & Social Network2024-03-29T11:15:18ZJonhttps://prostatitis.ning.com/profile/Jonhttps://storage.ning.com/topology/rest/1.0/file/get/985832079?profile=original&xn_version=202403260758&width=48&height=48&crop=1%3A1&xj_user_default=1https://prostatitis.ning.com/group/chronicprostatitistreatment/forum/topic/listForContributor?user=3q42oek09zg1r&feed=yes&xn_auth=noInfraRed lamp prostate treatment.tag:prostatitis.ning.com,2016-09-10:2201951:Topic:523002016-09-10T19:35:10.714ZJonhttps://prostatitis.ning.com/profile/Jon
<p>I have chronic bacterial prostatitis since 2014, I had antibiotics treatment like urologists</p>
<p>prescribed me (cipropol, augmentin, doxycycline, bactrim), but fluoroquinolone destroy my body (im recovering now, i dont know if</p>
<p>i ever recover, to back to work, to back to life).</p>
<p>antibiotics doesnt help, prostate pain is still.</p>
<p></p>
<p>On my polish forum I read about aparat lightment lamp treatment</p>
<p>(about 30 people chronic bacterial prostatitis cured…</p>
<p>I have chronic bacterial prostatitis since 2014, I had antibiotics treatment like urologists</p>
<p>prescribed me (cipropol, augmentin, doxycycline, bactrim), but fluoroquinolone destroy my body (im recovering now, i dont know if</p>
<p>i ever recover, to back to work, to back to life).</p>
<p>antibiotics doesnt help, prostate pain is still.</p>
<p></p>
<p>On my polish forum I read about aparat lightment lamp treatment</p>
<p>(about 30 people chronic bacterial prostatitis cured completly).</p>
<p>I have been using this lamp 4h daily (2h morning, 2h nightly) 8th month</p>
<p>and its working. Ejaculation night by night. Witamin c very large doses 6 g daily (dissolved in water i drink all day).</p>
<p>Magnezium 500mg daily.</p>
<p>Disadventages: you must use this lamp 3-4 hours daily,</p>
<p>day after day 12 months (or even more months) to cure prostate completly.</p>
<p></p>
<p>This treatment does not work for everyone, however works for</p>
<p>most chronic prostatitis bacterial.</p>
<p>I dont know why (or why not) it works.</p>
<p>InfraRed light lamp are widely used for sinus chronic infection</p>
<p>(sinusitis) and no one knows why.</p>
<p></p>
<p>Im also disappointed, 21th century and prostatitis is very very</p>
<p>hard to treat condition, sometimes uncureable condition,</p>
<p>and ignored also by urologists (its all in your head).</p>
<p>21th century we have people in space, robots on mars,</p>
<p>but insufficient care about health.</p>
<p>Big farma corrupts medical organization, fda, emea, </p>
<p>terrible drug side effects are obfuscated, hidden.</p> Strong warning fluoroquinolones drugs !tag:prostatitis.ning.com,2016-09-10:2201951:Topic:522162016-09-10T18:50:13.701ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Please dont eat fluoroquinolones drugs because of terrible side effects,</p>
<p>terrible irreversible body destruction (cipro, levoxa, avelox) when you have</p>
<p>chronic bacterial prostatitis.</p>
<p>99,99% doctors are not aware how dangerous this drugs are.</p>
<p>Fluoroquinolone drugs should be use LIFE or DEAD situations only!</p>
<p></p>
<p>Doctors should advise patients labolatory bacteria test</p>
<p>(Semen, eps) first, and the best antibiotics after !</p>
<p></p>
<p>FDA has created…</p>
<p>Please dont eat fluoroquinolones drugs because of terrible side effects,</p>
<p>terrible irreversible body destruction (cipro, levoxa, avelox) when you have</p>
<p>chronic bacterial prostatitis.</p>
<p>99,99% doctors are not aware how dangerous this drugs are.</p>
<p>Fluoroquinolone drugs should be use LIFE or DEAD situations only!</p>
<p></p>
<p>Doctors should advise patients labolatory bacteria test</p>
<p>(Semen, eps) first, and the best antibiotics after !</p>
<p></p>
<p>FDA has created new stronger warnings lately, please read on FDA www site.</p>
<p></p>
<p>Bactrim, augmentin are much sufer drugs.</p>
<p></p>
<p>Read more </p>
<p>fqwallofpain.com</p>
<p>floxiehope.com, </p>
<p>fluoroquinolonestories.com</p>
<p>... and lot of fluoroquinolones victim blogs</p>
<p>chriscwharris.wordpress.com, </p>
<p>thencamemichael.com, </p>
<p>...</p>
<p></p> TUNA (transurethral needle ablation)tag:prostatitis.ning.com,2014-06-22:2201951:Topic:455392014-06-22T13:25:25.532ZJonhttps://prostatitis.ning.com/profile/Jon
I read that TUNA procedure may give some relief for chronic prostatitis sufferer...did anyone try this procedure?
I read that TUNA procedure may give some relief for chronic prostatitis sufferer...did anyone try this procedure? Does anybody has expirience with Sildenafil?tag:prostatitis.ning.com,2013-07-24:2201951:Topic:429532013-07-24T12:37:00.078ZJonhttps://prostatitis.ning.com/profile/Jon
<p><span class="font-size-2" style="font-family: arial, helvetica, sans-serif;">I found one article where there were some improvments in lower urinary tract symptoms, but do not know did they have prostatitis or what?<span style="font-size: 2em;"> …</span></span></p>
<p></p>
<p><span style="font-family: arial, helvetica, sans-serif;" class="font-size-2">I found one article where there were some improvments in lower urinary tract symptoms, but do not know did they have prostatitis or what?<span style="font-size: 2em;"> </span></span></p>
<p><span style="font-size: 2em; font-family: arial, helvetica, sans-serif;" class="font-size-2"><a href="http://www.sciencedirect.com/science/article/pii/S0090429508004846">http://www.sciencedirect.com/science/article/pii/S0090429508004846</a></span></p> Lack of "dependable" treatments quite depressingtag:prostatitis.ning.com,2013-04-21:2201951:Topic:404542013-04-21T19:52:45.497ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Hi everyone, I'm Rhythm, 59, and new to this forum. Thanks for all the support here.</p>
<p>I've only had prostatitis for 6 months, so when I see members posting that they are in their 10th or 15th year of this unbearable disease, it makes me feel foolish saying I don't how much longer I can bear it. It also makes me feel quite depressed and hopeless that my own prostatitis could be around for decades. Obviously I was hoping to resolve it within months, or 1 year at the most, but there seems…</p>
<p>Hi everyone, I'm Rhythm, 59, and new to this forum. Thanks for all the support here.</p>
<p>I've only had prostatitis for 6 months, so when I see members posting that they are in their 10th or 15th year of this unbearable disease, it makes me feel foolish saying I don't how much longer I can bear it. It also makes me feel quite depressed and hopeless that my own prostatitis could be around for decades. Obviously I was hoping to resolve it within months, or 1 year at the most, but there seems to be no dependable treatments that work consistently, just "I tried everything and nothing's really helped," or "I get a tiny bit of relief, just taking the edge off, if I take a whole bunch of Tramadol" or some other heavy-duty prescription drug.</p>
<p>Occasionally, someone reports 50%-90% ongoing relief from some nutrient or supplement (like Allicin,) but then others say "Didn't do anything for me."</p>
<p>I, too, have tried many, many things to reduce the pain - mostly non-prescription methods & supplements, since prescription pain-relievers like codeine and drugs like SSRIs & Tramadol make me feel very druggy. NSAIDS like Advil/Aleve do nothing for the pain, even 600 mg of Advil.</p>
<p>I will continue my own search for something that actually works, and contribute here. I welcome any advice you all can share. I am currently trying a week of fresh-cooked Chinese herbs from a master herbalist who says he's had success with prostate/bladder issues, but on day 5, no improvement.</p>
<p>For me, my main symptom is the burning, rash-like pain in my scrotum, perineum, and rectum. I also have burning pee and pain at tip of penis, but I'm not peeing excessively...only had 3-4 nights in the whole 6 months where I got up 5-6 times to pee, usually just twice.</p>
<p>If I could just find something to dial down the burning pain a few notches in my scrotum, perineum, and rectum (particularly my rectum, for some reason) I could bear some of the other symptoms.</p> Bee Pollentag:prostatitis.ning.com,2013-02-02:2201951:Topic:376452013-02-02T00:03:10.880ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Has anybody tried bee pollen for prostatitis. if you did .did it work ?<br></br>one study compared antibiotics and bee pollen. 35% of men symptoms lessened while on antibiotics and of those<br></br>25% were completely cured. 72% of men symptoms lessened while on bee pollen.<br></br>I can't find the link to the study I read, but I did find a few other links on bee pollen . <br></br>one link study shows a much lower rate with only 42% improving.</p>
<p></p>
<p>The guy at prostatitis org claims it really…</p>
<p>Has anybody tried bee pollen for prostatitis. if you did .did it work ?<br/>one study compared antibiotics and bee pollen. 35% of men symptoms lessened while on antibiotics and of those<br/>25% were completely cured. 72% of men symptoms lessened while on bee pollen.<br/>I can't find the link to the study I read, but I did find a few other links on bee pollen . <br/>one link study shows a much lower rate with only 42% improving.</p>
<p></p>
<p>The guy at prostatitis org claims it really helped for him and got rid of the golf ball feeling.</p>
<p></p>
<p><a href="http://www.prostatitis.org/Cernilton.html">http://www.prostatitis.org/Cernilton.html</a><br/><br/></p>
<p><a href="http://www.prostate.net/2011/articles/lists/lists-prostatitis/pollen/">http://www.prostate.net/2011/articles/lists/lists-prostatitis/pollen/</a><br/><br/></p>
<p><a href="http://www.livestrong.com/article/466901-bee-pollen-for-prostatitis/">http://www.livestrong.com/article/466901-bee-pollen-for-prostatitis/</a><br/><br/><a href="http://owen.curezone.com/nutrition/beepollen.html">http://owen.curezone.com/nutrition/beepollen.html</a></p>
<div id="__tbSetup"></div> Headache in the pelvis?tag:prostatitis.ning.com,2013-01-11:2201951:Topic:371002013-01-11T15:56:33.152ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Hi,</p>
<p>This forum</p>
<p><a href="http://www.chronicprostatitis.com/forum/">http://www.chronicprostatitis.com/forum/</a></p>
<p>is full with success stories of people who adopted the "Headache in the Pelvis" book and the "Wise Anderson Protocol". </p>
<p>Something at that website gives me a feeling that these stories are not real - but mean to promote the book writers business.</p>
<p>Anyone here is familiar with these methods?</p>
<p>Any luck with…</p>
<p>Hi,</p>
<p>This forum</p>
<p><a href="http://www.chronicprostatitis.com/forum/">http://www.chronicprostatitis.com/forum/</a></p>
<p>is full with success stories of people who adopted the "Headache in the Pelvis" book and the "Wise Anderson Protocol". </p>
<p>Something at that website gives me a feeling that these stories are not real - but mean to promote the book writers business.</p>
<p>Anyone here is familiar with these methods?</p>
<p>Any luck with them?</p>
<p></p>
<p>Thanks</p>
<p> </p>
<p></p> Frequently asked questions for newcomerstag:prostatitis.ning.com,2013-01-11:2201951:Topic:370972013-01-11T14:55:29.294ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Hello Dr. Krongrad and forum members,</p>
<p>Thank you very much for opening this forum. Forums like these help the openness and sharing of information and many times helps accelerating the problem solving.</p>
<p>I have recently been diagnosed by chronic prostatitis and unfortunately my urologic physician is not a very informative person. So I am looking for information on the internet, and also looking for a different physician..</p>
<p>I think it would be great if you can add a section of…</p>
<p>Hello Dr. Krongrad and forum members,</p>
<p>Thank you very much for opening this forum. Forums like these help the openness and sharing of information and many times helps accelerating the problem solving.</p>
<p>I have recently been diagnosed by chronic prostatitis and unfortunately my urologic physician is not a very informative person. So I am looking for information on the internet, and also looking for a different physician..</p>
<p>I think it would be great if you can add a section of FAQs - Frequently Asked Questions - to this forum. It can help reduce the confusion of newcomers. Following the treatment I’ve had, I’ve got many questions that I think are FAQs, and I would be happy if you can assist here with some answers that can reduce the confusion J</p>
<p>If you like to know – below is the history & treatment I’ve got – which is followed by the FAQs I have</p>
<p>-----------------------------------------------------------------------------------------------------</p>
<p>History, Treatment & Diagnosis:</p>
<p>I think it started after having unprotected Oral sex by a girl I had a “one night stand” with, some months ago. At the beginning I’ve had some pain and irritations on my penis, and pain on the right testicle. Later I’ve also got a burning sensation at the urethrae. After being treated with Doxyline 200mg for 10 days, the pain has significantly reduced and burning sensation. But never totally gone. All the tests I’ve made were negative for any STDs.</p>
<p>During this time when I was masturbating, I did it only with soap and water – to not transmit bacteria to/from my throat.. about two weeks after the first Doxyline treatment had finished – I allowed myself to masturbate with saliva and then the symptoms had increased again. The physician prescribed Cipro antibiotics – which didn’t help much – and gave me the “two cups test” – which showed white blood cells (therefore I was diagnosed chronic prostatitis), and again all STDs tests were negative and other urine tests were normal. Later I got 10 days x 100mg Doxyline, and had some improvement. So the doctor told me to ejaculate A-LOT (several times a day) in order to clear any left “deposits”. That just made things worse. I got back to the Dr. and he gave me Gentamicin injection 5 days x 160mg. which did somewhat help.</p>
<p>Currently pain is much reduced in comparison with the beginning (yet there is some sensation) but burning sensation while urinating or after masturbating is still there. My current CPS index score is 15.</p>
<p>My personal question:</p>
<p>Do you agree with the diagnosis of chronic prostatitis?</p>
<p>---------------------------------------------------------------------------------------------------------</p>
<p>My FAQs:</p>
<p>1. When all STDs tests return with negative results (twice) – does it means that I don’t have any STD?</p>
<p>2. Currently I am not seeing anyone (romantically), but I am 32, and would like to get married and have kids. Does chronic prostatitis is a STD? Is it contagious?</p>
<p>3. Can chronic prostatitis affect the quality of sperm / fertility?</p>
<p>4. Can I donate blood?</p>
<p>5. Is there any statistics about people who were cured from it?<br/> 5.a. By any kind of treatment (even placebo treatment)<br/> 5.b. Just with time?</p>
<p>6. About NSAID (such as Ibuprofen – which I haven’t taken yet). Does is only reduce the symptoms or can help the cure? I.e. if I would take it for some times and symptoms will be gone – will they get back after stop taking the NSAID?</p>
<p>7. Same question (as NSAID) about alpha-blockers</p>
<p>8. I also have (recently) lower back stiffness (mostly after sitting) – I understand this is another known symptom. Was there any research done on exercise to make the pelvic floor more strong and lower back? Such as Pilates – to help to cure</p>
<p> </p>
<p>Again, thank you very much for this forum and for your so important assistance</p>
<p> </p> Prostate Massage (Painful?)tag:prostatitis.ning.com,2012-06-11:2201951:Topic:328232012-06-11T21:37:32.483ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Hello all,</p>
<p>I know most of you suffering with prostatitis have probably tried a prostate massage at least once but I'm curious to know how much pain you experienced during the drainage/massage itself. Does everyone with a prostate experience pain when average pressure is applied for a drainage or is it just people with prostatitis symptoms? The first massage I had was in Tucson, Az about 11 years ago & it hurt really bad the first few times but seemed to get slightly better with…</p>
<p>Hello all,</p>
<p>I know most of you suffering with prostatitis have probably tried a prostate massage at least once but I'm curious to know how much pain you experienced during the drainage/massage itself. Does everyone with a prostate experience pain when average pressure is applied for a drainage or is it just people with prostatitis symptoms? The first massage I had was in Tucson, Az about 11 years ago & it hurt really bad the first few times but seemed to get slightly better with each one. The massages ultimately helped with some of my pain & fatigue but everything has essentially stayed the same since that time. I've had several prostatic massages since then but it's still really painful every time (not just uncomfortable but almost unbearable) I've asked several urologists this same question but they always say that it's hit or miss & that they just don't know. I know there are a lot of people on this board from all over the world looking for any hints as to anything that will help, so I thought it would be a good idea to see what everyone says. I realize that most people browse through this site looking for any & all helpful information, so please, if you get the chance, leave a short reply so we can get a good idea of just how painful a standard (average pressure applied) prostatic massage is for people with prostatitis.</p>
<p>Thanks for your time, </p>
<p>Hunter </p> Spinal cord stimulator operationtag:prostatitis.ning.com,2012-04-28:2201951:Topic:327182012-04-28T05:24:08.607ZJonhttps://prostatitis.ning.com/profile/Jon
<p>Dear All,</p>
<p> </p>
<p>I decided to have a spinal cord stimulator operation for my chronic pain. Its 4 weeks post operation and I am doing well. I certainly have had some pain reduction and sleeping much better at night. Its still early days and whether the benefits last is still a big question. I decided to go this way first before I decdided to have the prostate cut out.</p>
<p>I still have some swelling and my surgeon believes it will take 3 months to 6 months to get the full…</p>
<p>Dear All,</p>
<p> </p>
<p>I decided to have a spinal cord stimulator operation for my chronic pain. Its 4 weeks post operation and I am doing well. I certainly have had some pain reduction and sleeping much better at night. Its still early days and whether the benefits last is still a big question. I decided to go this way first before I decdided to have the prostate cut out.</p>
<p>I still have some swelling and my surgeon believes it will take 3 months to 6 months to get the full benefit. </p>
<p>I will keep members of the forum informed of my progress.</p>
<p>Regards</p>
<p>Charles Wilson</p>
<p>Sydney Australia </p>