Prostatitis Forum & Social Network

Acute and chronic prostatitis discussion. Arnon Krongrad, MD, moderator.

John Clarke
  • Male
  • Blackburn.
  • United Kingdom
Share on Facebook MySpace
  • Blog Posts
  • Discussions (1)
  • Groups
  • Photos
  • Photo Albums
  • Videos

John Clarke 's Friends

  • NACHO B
  • david b
  • Dennis Taylor
  • David Feeley

Gifts Received

Gift

John Clarke has not received any gifts yet

Give a Gift

 

John Clarke 's Page

Latest Activity

Dennis Taylor and John Clarke are now friends
Sep 16, 2013
Lifebouy left a comment for John Clarke
"I saw him yesterday and I had pretty much made up my mind as long as he would do it. As many of us guys have done he could see I had done my homework and weighed up the risks.  I was expecting him to promote more caution and was surprised…"
Mar 29, 2013
John Clarke left a comment for Lifebouy
"What date is your LRP ? I am there on the 10/4 it is Russian roulette but looking at the figures the odds are in your favour,all the best good luck and keep in touch."
Mar 29, 2013
Lifebouy left a comment for John Clarke
"Hi John I have followed your thread and see you have been in touch with Chris Eden about a radical. I am seeing him tomorrow with the procedure in mind as i have reached the end of my tether.   22 out of 23 being pleased they did it is a…"
Mar 27, 2013
John Clarke left a comment for Nicholas S Muff
"I am considering surgery and your story has been an inspiration to me.Imhave had a problem with prostatitis for 20 years but this was kept in check with daily ante biotics for many years on and off .Only symptom was frequency and slight testicle…"
Mar 20, 2013
John Clarke replied to Hunter G's discussion Bladder Neck Contracture (Scar Tissue) post LRP
"Hi I had this done in October last year ,improved flow just two days in hospital. John Clarke"
Mar 6, 2013
John Clarke left a comment for David Feeley
"I was interested to read your comment about it all being stress .I would like to hear your story before I go ahead with surgery ."
Feb 28, 2013
Dennis Taylor left a comment for John Clarke
"You should be able to find them on the "Members" tab above."
Jan 29, 2013
John Clarke left a comment for Dennis Taylor
"How do I get on touch with the people u mention especially the guy nik In UK who did his op"
Jan 29, 2013
Dennis Taylor left a comment for John Clarke
"Yeah, that's my only option. Thanks, John. Btw, have you talked to Nick Muff or Bob Patterson? There's also that Nik guy who is also in the UK."
Jan 29, 2013
John Clarke left a comment for Dennis Taylor
"I think u r right the damage may have been done with that long journey home how long did u stay in Miami after surgery?anyway look forward not back"
Jan 29, 2013
Dennis Taylor left a comment for John Clarke
"It's just taking a long time. The pain isn't nearly as intense as but it does interfere with my life. I had complications, though. About 3-1/2 weeks in I had bad bleeding and was on a 3-way catheter for 2 days. When I got home the pain was…"
Jan 29, 2013
John Clarke left a comment for Dennis Taylor
"Sorry to hear no improvement ,are u still getting pain or is it just problems with erections.I have pain in testicle and also sometimes problems with urination.i have had prostatitis for over 20 years however not bad until prostae operation to…"
Jan 29, 2013
Dennis Taylor left a comment for John Clarke
"At 9:17am on January 29, 2013, Dennis Taylor said…    I've had the worst results of anyone I know so far. Over a year and still not as good as b4 surgery. I am getting better but very slowly.100% continent but no natural…"
Jan 29, 2013
John Clarke left a comment for Dennis Taylor
"Thanks Dennis how r u now are you improving?I have two daughters and in my sixties .Who did your operation ?I contacted Dr Krongrad in Miami and he offered the operation to however too far to travel for me from UK .A Dr Eden I have seen and he had…"
Jan 29, 2013
Dennis Taylor left a comment for John Clarke
"I wish I had given massage more of a try. But, I was like you. I was in so much pain I just wanted it out. Have had children yet? I think you should take care of that issue first bc you will be absolutely infertile once the prostate is out."
Jan 29, 2013

Profile Information

What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
33
If you have been diagnosed with prostatitis, please tell us your story: age, duration of symptoms, treatments, results, and the like.
I started with prostatitis at 38 and was treated with ante biotics .I am now 66 and since a prostate operation in march 2012 have had chronic prostatitis .I had a bladder incision in October 2012 to help with flow however 1 month after got a UTI after local hospital installed catheter which was removed 3 days later after high temperature and shakes.Since that time in constant pain poor stream and no quality of life.I am arranging for Mr Eden to remove the gland as anything has got to be better than this.I am frightened but I have to give it a try.Offered prostate massage anyone had any success with this?

Comment Wall (7 comments)

At 8:44am on January 29, 2013, Dennis Taylor said…

I wish I had given massage more of a try. But, I was like you. I was in so much pain I just wanted it out. Have had children yet? I think you should take care of that issue first bc you will be absolutely infertile once the prostate is out.

At 9:18am on January 29, 2013, Dennis Taylor said…

At 9:17am on January 29, 2013, Dennis Taylor said…   

I've had the worst results of anyone I know so far. Over a year and still not as good as b4 surgery. I am getting better but very slowly.100% continent but no natural erections yet. Got horrible side effects with Cialis and Viagra and they didn't work. Have had great results with Trimix but you have to inject yourself with it. You also have to experiment with the dosage but 5mcg seems to do the trick for me. I get usable erections for about 40 minutes. I also still leak urine on orgasm. But they say that goes away with time.

At 12:16pm on January 29, 2013, Dennis Taylor said…

It's just taking a long time. The pain isn't nearly as intense as but it does interfere with my life. I had complications, though. About 3-1/2 weeks in I had bad bleeding and was on a 3-way catheter for 2 days. When I got home the pain was way worse than right after surgery. I often wonder how my recovery would have been if not for that. My discomfort is mainly scrotal with some congestion and pain. I no longer have the through the roof pain and have cut back on painkillers. It all started in April of 2011 with epidydimitis in my left testicle. By the time the abscess had settled down I had full blown CP. I had this before back in the mid-90's where it has lasted 3 years. When I heard of Dr K I started making arrangements to see him. Another killer was the flight back home. Had to change planes twice and it took 11 hours. Wish I'd stayed in Florida at least another week before leaving.

At 1:16pm on January 29, 2013, Dennis Taylor said…

Yeah, that's my only option. Thanks, John. Btw, have you talked to Nick Muff or Bob Patterson?

There's also that Nik guy who is also in the UK.

At 2:55pm on January 29, 2013, Dennis Taylor said…

You should be able to find them on the "Members" tab above.

At 3:22pm on March 27, 2013, Lifebouy said…

Hi John

I have followed your thread and see you have been in touch with Chris Eden about a radical. I am seeing him tomorrow with the procedure in mind as i have reached the end of my tether.  

22 out of 23 being pleased they did it is a good result i guess you got that first hand from him. I only found information on him having done 10 up to Feb 2010 so it was very good to find your more up to date info which suggests he's still operating for Prostatitis

I am seeing him privately and have no illusion this would have to be private. Was he quite receptive to offering the procedure or quite cautious and encouraged you to try other things.

My situation is I have had it for 14 years initially i had a 8 months bad period .Thereafter I was left with a mild sensation rather than pain in the groin The only major issue being Premature ejaculation Everything changed on Nov 28th 2012 and I have been in constant chronic pain every since. Compared to many that have put up with it for years 4 months isn't long but the symptoms are such that I am in genuine fear when I wake up in the morning of the pain and it is having a massive affect on the quality of my day to day life. 

To be honest I am xxxx scared of making this decision for all the obvious reasons 

I cant accept the prospect of  living like this!, bringingme too the conclusion the Benefits outweigh the Risks

How about you are you any closer to getting it done?

Mark

At 11:27am on March 29, 2013, Lifebouy said…

I saw him yesterday and I had pretty much made up my mind as long as he would do it.

As many of us guys have done he could see I had done my homework and weighed up the risks. 

I was expecting him to promote more caution and was surprised how optimistically he spoke about it and it is reassuring to him talk of 24 out of 25 found resolution. My wife wasn't convinced before hand but was once we had seen him. I found his Nurse supportive of the successful outcomes

We booked it on the spot and he happened to have a space on the 4th April I wasn't expecting it that quick but am glad I don't have too long to threat about it. I guess you mean on the 10th your actually going in for procedure and not just a consultation

As you will know its 3 days in so unfortunately we wont cross over but email me privately and we can exchange telephone numbers etc. lifebouy100@yahoo.co.uk and perhaps talk in some more detail.

It is scary when so many advise against it but it takes individuals like Chris and Arnon to push the boundaries. Some how things have to change because 'Go home and learn to live with it' is such a gross underestimate of how bad this condition is.

Quite by coincidence my 70 year old step father had Chris do it 4 years ago and he tells me everything is fine Its all a bit bizarre talking to him in relation to his sex life with my Mum. This is where we find ourselves.

Good luck mate please keep in touch

Mark

You need to be a member of Prostatitis Forum & Social Network to add comments!

Join Prostatitis Forum & Social Network

 
 
 

Groups

Off Site Posts

Loading… Loading feed

GENERAL DISCLAIMER

The Prostatitis social network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly solicit and/or render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating acute or chronic prostatitis or any other health problem or disease.

The Prostatitis social network is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

© 2024   Created by Arnon Krongrad, MD.   Powered by

Badges  |  Report an Issue  |  Terms of Service