I haven't been diagnosed yet - I'm currently in the long wait that is the NHS system here in the UK. But my symptoms are very similar to what I am reading here on this site. I've joined because of the sheer frustration that my doctors don't know what is wrong....have had several urine cultures, all negative...xray and ultrasound which were totally fine. And now I am booked in for a CT Scan. I have been given Oxybutynin for the frequency - which occurs quite severely at night - but doesn't seem to be doing anything.
I understand your frustration. You may want to click here and figure out your CPSI score, which will help you to gauge symptoms severity in a standardized fashion. Otherwise, look around and don't hesitate to ask if you need help navigating.
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