Hi Patty; I am so thankful our interview was a help to you and your husband. We were hoping our story would be a blessing and encouragement. We know what it is like to feel there is no hope! 

I am glad to answer any questions I can for you. It is a debilitating illness and I can relate! Nick was so discouraged even being a doctor, that I, like you, had to do the investigating. Don't give up!

Since he has only been diagnosed a year and a half ago, how many years has he actually been having trouble?

I am sorry to hear your husband is so discouraged it is hard for him to even talk to you about what is going on inside his head and heart but hang in there! There is one thing that you might try that helped Nick for a year, before he had the surgery, and has been a help perminantly for others. If you are interested write me back. What state to do live in?

I must say, however, that Dr. Krongrad is wonderful, compassionate and competent! You can't find anyone better should you decide to have the surgery. He and his staff are there for you from beginning to end. Nick is so thankful he had the surgery and has never felt better! His energy is back, no longer any pain or debilitating illness that would litterly make him sick in bed. He is a very active and involved man and this illness was devastating to us.

Feel free to ask me any questions, no matter how persoal, I am glad to walk with you through this!

I am thankful you would take the time and effort to write. There is help and hope! 

@ Patty tell your hubby to stop being such a guy about it and join  the forum.
It helps to know your not alone out there with this and having other guys to talk to about it.