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Pain in legs and feet
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My background:I have been living with what I recognize as chronic non-bacterial prostatitis since January 2011. Early on, I had slight discomfort urinating, slight dribbling, and pain at the base and…Continue

Started this discussion. Last reply by James Sep 8, 2014.

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What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
If you have been diagnosed with prostatitis, please tell us your story: age, duration of symptoms, treatments, results, and the like.
I have been living with what I recognize as chronic non-bacterial prostatitis since January 2011. Early on, I had slight discomfort urinating, slight dribbling, and pain at the base and bottom of the penis. From the very beginning, my urine tests always came back negative for STIs or bacteria. They did appear to show signs of inflammation such as the presence of white blood cells. Throughout 2011, I was put on the following antibiotics:
Ciprofloxacin 500mg
Norfloxacin 400mg
Doxycycline 100mg
Levofloxacin 500mg
…and many others...
None proved effective.

That year, I also had a cystoscopy which showed urethral irritation, and I was diagnosed with non-specific urethritis.

I received relief through ibuprofen and quercetin.

During the winter of 2012, my symptoms took a turn for the worse. It became so debilitating that I had to take time off work. At this point, I called Dr. Toth in NYC and flew down to see him the very next week. I spent 5 weeks there and had 10 Injections, hoping that would clear it up. He commented that my left prostate showed significantly more scarring than my right. The injections were relatively pain free and I was getting the results I was seeking. The perineum pain disappeared, but I was left with this lingering pain that originated in around the location of my left seminal vesicle and radiated down my left leg to my heel. The pain was definitely more tolerable than what I had been experiencing before seeing Dr. Toth. Now for the life of me, I could not figure out if this pain had been with me previously and I had just not noticed it due to the severity of the perineum symptoms, or if it had originated in New York. The pain was exacerbated by orgasm, wearing shoes (aggravated the nerve in the heel it seemed), any exposure to heat (e.g. hot tub), exercising or working out my legs in any way (esp. biking), and sitting for long periods of time on a hard surface.

I received 2 booster shots, one from Dr. Toth in November 2012, and one from my own doc in February of 2013 due to recurring perineum symptoms.

During the summer of 2013, the pain that was occurring solely on my left side began happening on my right but to a much lesser extent.

In September 2013, I thought the pain in my legs might be due to an old skiing accident I had as a kid. I went on a campaign to solve it by seeing chiropractors, osteopaths, acupuncturists, physiotherapists, and rehab specialists. I had CAT scans and three MRIs targeting the pelvic and lumbar areas, all of which turned up normal.

Stretching exercises, particularly those targeting the piriformis muscle seemed to be helping. It seemed my symptoms had all but disappeared for about a week. I continued them, but then I relapsed which put me back to square one.

In January 2014, I started getting mostly left-side pain at the base of the penis at the pubic bone, but on the top and to the left this time. I chalked it up to referred pain from my legs. This however continued and is occurring today. Some old urinary symptoms have also been appearing which makes me think I am having another bout with prostatitis.

Today, I nevertheless continue to see all of the natural doctors I have previously listed, but nothing has seemed to make a significant difference to date.
Which is your favorite prostatitis web site, forum, or blog?

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