What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
If you have been diagnosed with prostatitis, please tell us your story: age, duration of symptoms, treatments, results, and the like.
Started about age 40. Going on 13 years now. Started soon after treating a UTI with antibiotics twice, as it recurred once, and having a cystoscopy soon after. Lots of antibiotics and finally got relief when prostate massages included in the regimen. Went for years with this kind of treatment when it would flare up. Also used amitriptyline (sp?)for a couple of years. When things got progressively worse and burning pain spread from groin and buttocks to the thighs, I got good relief from Cymbalta. Meanwhile, I started seeing docs for pudendal neuralgia and found that cortisone blocks of the pudendal nerve helped a lot. 6 months to 12 months at a time, the pain would reduce from 4-5 to 2 or less. This gave me the courage to have a pudendal nerve decompression surgery in 2010 and after waiting a full year for max benefit, my symptoms improved even more and I was happy with pain at less than a one. Unfortunately, a had a major flare up, out of the blue, Dec 2013 with major pain that seemed to be right in the prostate. It slowly calmed down, but real relief only comes from injections, and they only seem to help for 1-2 months now. Also, new symptoms have been bugging me this time around, including bouts with nausea, which has gone away, but also fatigue, malaise, and nervous system irritation that makes me feel irritable and unable to relax. No fevers, but at times, I feel slightly feverish or get mild chills. I have always had sitting pain that gets worse as the day progresses, so I stand a lot at work. My pains also get worse as my bladder fills and improves when I empty the bladder. The toilet seat is the best seat! Seriously considering prostatectomy, but seriously don't want to go through that with its risks and permanent changes when I can't be sure it will help. Ugh.
Which is your favorite prostatitis web site, forum, or blog?