Frustration with prostatitis

[G8 GT]

Here I have had another day of fluctuating and moving pain. Today has been primarily anal pain, along with some frequency. The worst part is I have had a headache for 5 days now. Stress? Anxiety? Weather? Prostatitis? Who knows. I have also been having random, short-lived temperature spikes (99.5 +) with heavy sweating. No idea what that is either, but I would bet it is the prostatitis as well.

I happened to also have an appt with my primary doctor, who I greatly respect, and we discussed the severity of my prostatitis. He was in shock when I told him how bad it has affected me, and I mentioned to him that I thought about the LRP. He looked at me like I had 3 heads, and said I did not want to do that. While I respect what he says, is there some bit of ignorance in the medical field with this "disease?" I know surgical removal is not well documented for prostatitis, but why is it so terrible when other things do not seem to work? What are the alternatives? Living with it? Pain management? Sorry, those are things that I just cannot do.

I am not quite sure what my point is of this blog, but hopefully some of you have either shared, or understand, the frustration I am having.

[Nicholas S Muff]

Hi Mike; Your trials sound all to familiar. Rectal pain, pelvic pain, burning pain, pain down the thigh. I felt like I had the flu, ached all over when things were at their worst ran fevers above 101. Dreching night sweats. I think for most professional I consulted with they really have no idea just how bad and disabling chronic prostatitis can be. They do a urinalysis, look in the bladder and that's all normal so just try another round of antibiotics or a difderent kind of antibiotic. But it keeps coming back again and again. Your right living with it and pain management are not the answer.

All I can tell you is I would have given anything to get over all the pain an misery. Losing your prostate is not the end of the work. it is not a life sustaining organ! Men have that surgery all the time for prostate cancer. It's just that in addition to misunderstandings about how bad the disease can be prostatectomy for prostatitis is such a new approach it hasn't hit the mainstream yet. Believe me it will!

So to bottom line is would you be willing to give up your prostate gland surgically to get rid of the misery your in? I did and it was the end of a 13 year nightmare. I feel better than ever. All the pain, buring, aching, sweating, fevers and all have been gone since the LRP, 1o months now. I can make love to my wife and enjoy life as I could not before. So if your as miserable as you sound consider having the infected gland out and be done with it!

I pray for you in your troubles and decision making. If you have other questions or comments I would be glad to discuss them! From a previous sufferer whose been delivered! Nick

[Nik]

I have been getting hot and cold a lot lately. I saw my GP today and I am amazed he actually understood my rational behind removing my prostate even though he is not officially allowed to recommend it. He said if I go ahead he will make sure I have viagra/pads and whatever else I may need in order to help restore erectile function & continence. I have been in too much pain the last few weeks to even think about sex anyway. I told him about the success the majority men have been having with Dr Krongrad and Eden and he said it sounded totally logical and was not surprised it worked in most cases.
I am unable to sit for long without causing major rectal pain. I am technically disabled because of this. I think the ability to sit down is worth risking potency and continence for. I am also fed up with the constipation that goes with this and the pain after every bowel movement. I dread going to the toilet every morning and despise the pre-bowel movement pain I get that wakes me up at 5am every day.

[Nik]

I forgot to mention that two lady Dr's I have seen are not shocked at all about prostate removal. Is this a man thing....????

[Arnon Krongrad, MD]

Nik, were the lady doctors urologists? Is it a urologist thing?

[Nik]

One was a fertility specialist and the other was a GP. None of them urologists.

[Arnon Krongrad, MD]

Exactly.

[Nik]

We would have to see a few lady urologists to test that theory LOL...!!!!

[Nik]

I have to admit if I was a healthy man (Dr) with no problems, confronted with a man in a lot of pain who could not sit down I would be quite shocked that he wanted to remove his prostate but I think I would also understand if he told me his life story on prostatitis and how it affected his life. I have never been given enough time in a consultation (UK NHS time limitation probably...????) to be able to do that (except with Chris Eden). You spoke to me on the phone longer than any urologist has given me in a consultation...!!!

[G8 GT]

Thank you for the reply Dr. Muff! Your story is certainly hope for us fellow sufferers out there. I have no idea how you went 13 years with prostatitis, considering my shorter time has been pretty agonizing. I appreciate the offer to answer questions, and I am sure I will be taking you up on that soon.

Nik, I too am having the chills/hot-cold flashes both with and without an actual fever. It is like my body is confused and unsure how to adapt to the environmental temperature around it. Also, the further I get into prostatitis, the more and more I am getting the rectal pain. I also get pain deep inside, like someone is pushing my bladder or prostate from the inside, attempting to get it out the front of my body!

Interesting points about the medical fields thoughts on prostate removal for prostatitis. I just got back from a short vacation on the shore, and during my time there I was speaking with a family friend who has been a doctor for over 40 years. He does work in cardiology, but I asked him what he knew about prostatitis. He told me he had been a sufferer, but only with the random acute stages that were taken out by AB's. The conversation then moved to prostatic cancer and he was saying that he believes he may have this particular form, and that he will need his prostate removed eventually. He was certainly convinced removal was the way to go for cancer, but when I mentioned removal for prostatitis, he gave me the all too familiar look, you know, the one that makes me temporarily feel like I am insane.

To think where the medical field may be in the future for prostatitis. Hopefully, people will give those same looks when someone says prostate removal isn't the way to go for severe, chronic prostatitis.