"I agree with you, STRESS,,,, I think the book by amy stein is way better than the head ache in the pelvis book though, if you have not gotten it or heard of it , get it, I have little to no symptoms at this point for 3 years,,, went on anti…"
"I would highly recomend the book "A Headache in the Pelvis" as it has helped in the control of many of my symptoms. There are several widely different schools of thought. After five years of research I would consider…"
"get the book heal pelvic pain from amy stein (i think) this book was very helpful,, get a scrip for valium and go to pelvic floor dysfunction physical therapy, Im sure you have had enough antibiotics over the years.. Odds are you have no infection…"
"hay Arnon,,, not sure if you remember me, I had pretty severe symptoms about a year and a half ago, went and saw you a couple of times, just giving an update.. I myself believe in my case it was a stress disorter and or muscle-pelvic floor…"
"thanks for answering me, I guess the only information we are looking for is, have you done anymore removals?? if so has it helped there condition? I think I speak for everyone here that is suffering by saying its kinda the only light I see at the…"
What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
If you have been diagnosed with prostatitis, please tell us your story: age, duration of symptoms, treatments, results, and the like.
5 months now, not feeling so bad now, worst symptoms have subsided (golf ball in the butt feeling) still have pressure when sitting in perenium but not pain, and urinary urgency at night, low back pain and pain in butt cheeks is still work in progress, started taking cymbalta to help with pain and the depretion that has set in since all this started, both are being helped by taking cymbalta, have started pt for pelvic floor dysfunction, if you have any ?s just ask, Dave Feeley
I have had this mildly for about 5 years then badly for the last 2. My problem started after haemorrhoid surgery. I believe bacteria from my rectum got into my prostate. The only evidence I have of this is a heavily calcified prostate shown under trans-rectal ultrasound, and a urine infection showing ecoli bacteria 2 years ago just before my prostatitis got really bad. There is no bacteria found in my semen. I have found no dr willing to do prostate massage and tests. They all say I had so many antibiotics in the beginning that if they did not work, what's the point of knowing your bacteria if you can't kill it.
My symptoms are rectal pain (golf ball feeling), made worse by sitting. Constipation. Defecation can also make symptoms worse or better-very strange. Slightly yellow tint to semen caused by high white blood cell count. Increased pain for 2-3 days after intercourse. Pain in tail-bone area/lower back when lying down on my back.
When sleeping I have to lie on my side or front to get any comfort. Things that help are Lyrica, paracetamol, aspirin, 25g of ginger per day in juice & quercetin & bromelain capsules along with stool softeners.
I know what you mean about medicine cabinet LOL....!!!
I plan to have some injections soon to see if it would be an effective way of controlling it. If not then I am seriously considering the operation. My wife & I are undergoing IVF first to try for a baby.
Yes Dave it really sucks, you kinda learn to cope with it to a certain degree. I have had the feeling of having golf ball (you call it cell phone) in the rectum for 2 years now. My wife and I have just failed our second IFV attempt. We plan to try a total of 5 attempts before giving up. Only then can I consider prostate removal, but first I plan to visit Dr Bahn in California to see if I respond well to the injections. A few have had good results and are able to maintain a large reduction in symptoms through repeat visits every 6 months.
I can only suggest pain control (maybe lyrica) and anti-inflammatory drugs (aspirin ibruprofen etc). At this early stage of your problem I would seriously consider seeing Dr Bahn for direct injection. If your problem is infection based you may respond well.
Not sure. As you say, in 2008 this was a buzzing forum but not so now. Possibly because there is not a lot that is new. Having said that, this is a condition which is still badly managed in many instances. Often because patients with prostatitis are treated empirically and left to the junior staff to see with little/no continuity.
I think you're right, Chris. Not much is new, excepting the paper I posted on prostatitis and prostate cancer risk. So this forum's principal value is to help men who have newly found it to communicate with others in the same position. If and when some of the other doctors involved in prostatitis treatment become more open, they may direct some of their patients also to join this forum. It will be nice to have patients here who are undergoing massage, injections, suppository, and other treatments. This will get all of us beyond private one-on-one emails, which really deprive us of the chance to ask questions and learn.