"Tramadol, which Jef cites, has been also cited by others, including Charles and Jaime, but with uneven results. Charles wound up with prostatectomy, which finally relieved the pain, and Jaime complained that tramadol did not control his…"
Prostatitis Forum & Social Network
Acute and chronic prostatitis discussion. Arnon Krongrad, MD, moderator.
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Patty Stillman
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- Spring Hill, FL
- United States
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"I am 38 years old and I have been suffering this nightmare for 2 years...I have taken most of the medication you mentioned: antiflamatory drugs of all kind, all the antibiotics which can penetrate the prostate, Amypriptiline, alpha…"
Journaling
I've decided to keep an online journal here of what's going on since I've really failed over the last year to keep track of everything. Today my husband called the urologist and asked if there was an appointment sooner than the 18th and there was. TODAY! They decided to fit him in this afternoon. We get to the office and a panic attack sets in. A very real and physical panic attack complete with fainting, chills, shaking, and tingling sensations throughout his limbs. The same thing happened to…See More
"Thank you, Dr. Krongrad. I assure you I understand that. We've also decided to get back on regular routine visits with his urologist, despite my husband's disappointment in him and will check with him about anything we try. I figured…"
"Patty,
Please keep in mind that the members of this online social network have not examined, met, or even directly heard from your husband. Nobody can through this network provide your husband with any medical care or recommendation. Thus,…"
"Some resellers are much more expensive than others so it pays to search around. I remember one guy in the states saying it was cheaper to order from the uk than from his own country. If you do that though obviously it will take a while to reach you."
"Hi Patty it should look like this:
http://www.alliginusa.com/http://www.alliginusa.com/
or this:
http://www.allimax.com/products.html"
"Oh, thanks for the heads up. They did not have the Allicin Max where I went and I just got a generic garlic supplement. I will look for the AM instead. Looks like I can get it on Amazon. Is this…"
"Patty, make sure you get Allicin max specifically, as its unlike ordinary garlic supplements in that it has a patented process that gets stabilized Allicin into the bloodstream. I believe it is also sold in US as alligin, coming mixed with ginger…"
"Thank you, guys, it's nice to meet both of you. I picked up a garlic supplement on your recommendation the other day and he just started that. He had a rectal exam for blood in his stool the other day which caused a pretty serious flare…"
"Hi, Sue! Thank you! We are in FL. Yes, I'm interested in trying anything for him that can offer relief. Even if Paul (my husband) is a candidate for surgery, it's still a ways off as we get our finances straightened out for such a…"
"Hello Patty, I was very sorry to read your husband has to suffer that much. I really hope he can get some improvement in his condition. I have read Nik's comment and his suggestion and I agree with his recommendations. I also has good…"
"Hi Patty, I am so sorry to hear how much pain your husband is in. I have been there myself many times, once even smashing my head through a cupboard door just to distract myself from the prostate burning up. If its any consolation I am a lot better…"
"I wrote this fairly late at night yesterday. I guess what I'm asking is, is it too soon for him to be considered for the laporo (sp?) surgery? If his urologist is giving up on him does he have to start back at square one with another uro? The…"
"Thank you Dr. Krongrad. I hope to connect with many of the patients who frequent your site. The success stories do offer a lot of hope. So far we haven't even tried getting in to see Doctors in the Tampa area. We are about 40 miles north of…"
Profile Information
- What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
- 35
- If you have been diagnosed with prostatitis, please tell us your story: age, duration of symptoms, treatments, results, and the like.
- My husband was diagnosed with prostatitis over a year ago and I'm just trying to find an answer for his question "am I stuck with this for life?"
Patty Stillman's Blog
Journaling
I've decided to keep an online journal here of what's going on since I've really failed over the last year to keep track of everything. Today my husband called the urologist and asked if there was an appointment sooner than the 18th and there was. TODAY! They decided to fit him in this afternoon. We get to the office and a panic attack sets in. A very real and physical panic attack complete with fainting, chills, shaking, and tingling sensations throughout his limbs. The same thing happened…
ContinuePosted on April 11, 2011 at 11:30pm — 2 Comments
My husband's words on the issue:
Right now, this is the extent of what my husband can think of to say about his current pain and suffering:
"In this world, there are one of two things that can go seriously wrong with your health. It can either be chronic or terminal. One flat-out kills you, the other tortures you until you die. Right now, if I have to have one or the other, I wish it wasn't the chronic one."
"In this world, there are one of two things that can go seriously wrong with your health. It can either be chronic or terminal. One flat-out kills you, the other tortures you until you die. Right now, if I have to have one or the other, I wish it wasn't the chronic one."
Posted on April 7, 2011 at 12:34pm
First entry
I decided to join this site, if for anything else, to just be able to talk about this in a community that might understand. My husband, Paul, has been suffering from severe symptoms of Chronic Prostatitis since around the end of November, 2009. His old GP recognized the symptoms right away and referred him to a urologist who then officially diagnosed him with CP. He has only done medication treatments and one massage session. I know little to nothing about medical terminology and CP even…
ContinuePosted on April 7, 2011 at 9:00am — 9 Comments
Comment Wall (3 comments)
- At 6:47pm on April 6, 2011,
Arnon Krongrad, MD said…
Hi Patty,
Welcome to the prostatitis network. Can you tell us a bit about your interest? Do you know someone with prostatitis? Do you work with patients with prostatitis?
Arnon
- At 7:18pm on April 6, 2011,
You're right, Patty. The wives group was started by Sue Muff, a nurse married to Nick Muff, a radiation oncologist, who had really bad prostatitis for 13 years. They did a joint interview that is 45 minutes long that you can watch if you click here. The shorter version is on the home page for this site.
You can read through the discussion threads and at any time jump in to ask questions. You can also reach out to individual members as you did here. And you can look at some of the less interactive links posted on the side columns to get more structured information.
Go ahead and poke around. And then if you have any questions, don't hesitate to ask me.
Arnon
- At 9:05am on April 7, 2011,
Way to jump in with both feet! :-)
David Radford, whose video is also linked on the Home Page. Maybe you want to reach out to him. You can leave a comment on his page or suggest your husband just call him. He lives about 200 miles from you and went through this for 8 years, including with some of the doctors in the Tampa region.
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