"I think we will see a lot more of this. Ike, Robert, Merlin, Steve & the anecdotal guy in my link above. Chris Eden also tells me has had very little success with partial prostate surgery for chronic prostatitis. It would indicate that the pain…"
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Acute and chronic prostatitis discussion. Arnon Krongrad, MD, moderator.
Steven Winter's Discussions
TURP is a DISASTER Only Removing the Prostate Works
11 Replies
Started this discussion. Last reply by Nik Jun 11, 2010.
Pain releif from LRP
Started Sep 24, 2009
Just Posted for some encouragement
3 Replies
Started this discussion. Last reply by Arnon Krongrad, MD Sep 12, 2009.
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"Nik, have a look also at this comment that Robert left. He also had had 2 ineffective prostate operations but then found relief with LRP. fyi. Arnon"
"We should perhaps take a step back and examine:
1) "Radical TURP" was actually described in this 1982 study. It was shown to be of partial therapeutic effect. I don't have access to original paper so cannot examine the study methods…"
"This guy's story rings so true with others who have failed partial prostate surgery.
http://www.prostatitis.org/iwfsugery.html"
"Thanks Nick. It seems like all of the discomfort is from the surgery. I see the doctor Thursday to get the staples out. The great news again is the severe prostate pain is gone. Since we all went through this nightmare for so long any, little pain…"
"You have just had MAJOR surgery Steve. You will have some pain and discomfort for a while yet but from what I have read (A lot) this will fade over time. As a general rule, you should take it easy for at least a month but everybody is different and…"
"I know guys are busy with their lives but if any that had the surgery had time to call me, I would appreciate it . I just wanted to hear from a patient the time table and recovery from the surgery itself. My number is 480-206-1720. You get so…"
"The only discomfort I have is from the surgery.While I am excited I probably over did my activities. On the recovery time is it normal to have some discomfort. My first bowel movement caused some discomfort. It scares you for a second to even have a…"
"Oh wow, It's good to know that other doctors are starting to notice Dr. Krongrad's work. The only problem I see with this, is having an inexperienced surgeon perform it, making the pain ever worse.
It looks like your doctor was one of the…"
"Congratulations Steve and thanks for your post. I wish you a speedy recovery and a better life now without pain. God bless Dr Krongrad & the very few other prostate surgeons who are willing to follow him through "THE HOLE IN THE FENCE"."
"It is great to hear such good news!
How long have you been suffering of this condition?
I wish you a fast recovery."
TURP is a DISASTER Only Removing the Prostate Works
I want to thank Dr. Krongrad for his work. It appears his work may have given me my life back.Like all the horror stories I went years with pain and infection to the point where I could not travel or enjoy anything. I have a spinal cord injury so I have some more unique issues but the pain and fevers are debilitating.I had a TURP done four months ago and it made the pain higher and the infection more severe.My insurance company would not pay for me to go out of state so my doctor in Arizona…See More
Pain releif from LRP
For the guys who had the LRP when did you realize the pain was gone for good after your surgery.When I had the TURP I woke up in more pain than ever and I could still feel the 'golf ball on fire " feeling.When you wake up from surgery did you know right away the surgery was successful and is it possible to eventually have no more pain. After dealing with this so long it almost seems going painless is just a dream.SteveSee More
"Urologists are not schooled to be cynical. Urologists are taught to be data driven, which is very legitimate and quite important to patients. The data have not been available to support surgery for prostatitis. So on this basis there is no rationale…"
"I agree that this debilitating disease does not get the national exposure it needs to get an increase in the quality and effectiveness of available protocols and treatment.
On the issue of a Doctor demonstrating the degree of apparent narrow…"
"After proof reading when I said taking into him ,I meant the urologist that did the TURP.I will blame the sloppy writing on my pain meds.
Steve"
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Comment Wall (2 comments)
- At 10:46pm on June 22, 2009,
Steven Winter said…
- I could write for an hour on my trek that led me to this page but I just took a pain pill and it is hard to concentrate.
The bottom line is I went to over ten urologists and they say you have to live with this and to keep taking antibiotics and pain meds.
Once the Prostatitis gets to a certain level it is IMPOSSIBLE to live with and enjoy anything except for the few minutes a day when the pain medicine takes affect.
I am taking 5mg of hydrocodone and it used to give me a few hours of releif but now it may give me at the most a half an hour.
I made a bad decision and had a TURP and they found a large amount of stones and pockets of pus but the pain now is even worse.
The only thing keeping me going is the hope when I have Dr. Krongrad remove my prostate I can be pain and infection free.
My family and myself are paing a big price because of this terrible ailment.
The first time I laughed in a week was when I read about the patient who told his doctor to let him hit his testicles with a bat and then see if he would like to go jogging. Spoke with Ike for some encouragement.
Appreciate this site and could use prayers for perserverance. I thought I went through some tough time before but nothing compares to this.
The AUA needs to change their guidelines to include this as an option for treatment right away. All the studies show cipro and alpha blockers do nothing for our type of cases.
Steve
- At 4:57am on June 23, 2009,
Nik said…
- I believe many years ago in the UK (before the "softly softly" aproach), they did remove the prostate in extreme cases of prostatitis, or prostate pain. A friends father came home from work in the 60's in agony. They called an ambulance when he could not get off the floor, he was in so much pain. They took him away and removed his prostate without question. The pain was gone and he regained continence, but of course this was before nerve sparing surgery so he lost his potency but he was so relieved to be out of pain that he did not care anyway. I feel that most urologists over emphasise the importance of the prostate these days and seem to treat it like its an essential organ like the heart or something. They seem to ignore the amount of pain the man is in, and that with a good surgeon, recovery of potency is likely over time.
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