Prostatitis Forum & Social Network
Acute and chronic prostatitis discussion. Arnon Krongrad, MD, moderator.
Hunter G's Discussions
Failed LRP Update
9 Replies
Hello everyone,I just wanted to update my experience with radical prostatectomy for prostatitis. I had LRP last July (2012) & I'm worse now than before the surgery. The pain directly after the…Continue
Started this discussion. Last reply by Dennis Taylor Aug 27, 2014.
Bladder Neck Contracture (Scar Tissue) post LRP
2 Replies
Hello everyone,I had LRP in July of last year (7 months ago) for prostatitis and I was recently diagnosed with a bladder neck contracture by my local urologist a couple of days ago. My urine stream…Continue
Started this discussion. Last reply by Hunter G Mar 6, 2013.
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"I was like a bioavailability of 5. It's raised my levels to normal, whatever that is, but no change in my sex drive and I have really bad acne on my chest and shoulders. So, I'm weaning my way off of them."
"Is the testosterone therapy raising ur testosterone levels? Also what was ur number when diagnosed?"
"I think I've crossed a threshold. I was almost praying for it to be as good as b4 surgery. But, I think considering everything, it's better than b4 now. It's funny, the guys who have had this operation for cancer seem to recover more…"
"Dennis how is ur pain now? Better or worse before surgery"
"I had worse pain post-op, too. My quality of life b4 the surgery was a 5 or 6. It was about a 1 after. I also had a bleeding episode after 3 weeks and wound up in the hospital. I kept track of my pain and I was even worse after the complication. So…"
"I really believe it's neuromuscular in nature since a urodynamic test & 2 cystoscopies were basically normal. I just started a pelvic floor myofascial release program with a physical therapist in the hopes that it will release some…"
"Really sorry to hear about this Hunter, my thoughts go out to you. I guess it does not work for everyone."
"Hunter why do u think it didnt work for you? I read ur three month update an things were getting better it sounded like."
Failed LRP Update
Hello everyone,I just wanted to update my experience with radical prostatectomy for prostatitis. I had LRP last July (2012) & I'm worse now than before the surgery. The pain directly after the surgery (gas and incision directly over previous scar tissue) & from the procedure itself was almost unbearable. I kept the catheter in for 10 days & for several months things finally started to calm down somewhat until about the 6 month mark. Keep in mind that my erections were still…See More
"Hunter, would love to know how you are doing with the LRP??"
"Hey John,
Did you have LRP before the bladder neck procedure or did something else cause the contracture?
"
"Hi
I had this done in October last year ,improved flow just two days in hospital.
John Clarke"
Bladder Neck Contracture (Scar Tissue) post LRP
Hello everyone,I had LRP in July of last year (7 months ago) for prostatitis and I was recently diagnosed with a bladder neck contracture by my local urologist a couple of days ago. My urine stream had been getting weak over the past few months. He tried to use a cystoscope to look at my bladder but he couldn't get it through so he had to use form and followers (dilate) starting with a 12F, 14F, 16 F & finally an 18F but that was as much as I could handle. Anyway, I have a procedure set up…See More
Profile Information
- What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
- 28
- If you have been diagnosed with prostatitis, please tell us your story: age, duration of symptoms, treatments, results, and the like.
- 38 year old male. Got urinary tract infection/chlamydia right before basic training at the end of 1992, which turned into epididiymitis & prostatitis. So, I've been dealing with this hell for over half my life now. I've had just about every test known to man such as: Ultrasound, CT Scan, DRE, etc. I've also had the following procedures: (1) Vericocelectomy = no relief (2) Testicles tacked (idiots thought it was torsion after about 2 years of suffering) = no relief & hell to recover (3) Cyctoscopy (had to ask for this test) that showed prostate was restricting/squeezing urethra at bladder, so (4) TUIP was performed = offered some relief from buring urination but I now have dribble & weak stream (5) Prostate massages perfomed in Tucson (2000) = the first couple of drainages really seemed to help relive some pain and give me slightly more energy but no more real relief from 20-30 massages as the years went on. (6) Inguinal cord block (test to see if microsugical denervation would help) = blocked almost all pain for a couple of hours but then came back (7) Microsurgical denervation of spermatic cord = not really any difference than before the surgery (8) Spermatic cord block = complete relief for a couple hours but then came back. (9) loads & loads of different antibiotics throughout the years = messed up my immune system & caused candida infection, which is mostly under control now but never really seemed to help. (10) Trans urethral prostatic injections of antibiotics (gentomycin & steriod?) hurt like hell for days and offered no real help. (11) Epididymectmy = Very rough recovery (lost 15 lbs.) & did not help after cord block helped. Prostate drainages always show some type yeast/pus and when cultured & various types of bacteria. DRE's usually hurt really bad and sometimes one lobe would be larger than the other but now they appear to be about equal but still hurt if massaged. Also, ultrasound shows several calcifications, most fairly small but many throughout the prostate. As you can see, the only real relief I've ever gotten is through the initial prostate massage (first 2 or 3) and cord blocks. I also take tramadol for pain once or twice a day & klonepin at night to help with periodic leg movements and teeth grinding. I believe that prostatitis is causing all of my symptoms because if you look at what I've had done throughout the years (through process of elimination) there really isn't anything left to cause my symptoms. My main complaint is testicular pain (mainly left side) and pain that radiates below the bladder/navel) Also, chronic fatigue, brain fog, some discomfort/slight pain after ejaculation. I've had this for so long that I wouldn't know what it feels liek to be "normal" again. I can say that the spermatic cord block, which made hte pain go away fora few hours, felt awefully nice. I must admit that most of my relief came from me doing my own research & having the doctors help me along, very sad I know but such is the case with this disease. Even after all of the procedures & hell that I've been through, I'm scared todeath of having the laparoscopic prostate removal. I've read the website and read the reviews, even most of the forum posts & it seems like it might help me. I just want to be damn sure that it is my prostate (don't really know what else it could be) & not something else before I sign up to have my prostate removed. If anyone reads this biography & you've had the procedure performed or even if you just know a lot about prostatitis, please email me so that we can compare notes, etc. Thanks for listening! Oh yeah, I've already got 3 kids, so I'm not worried about having any more children.
Hunter
- Which is your favorite prostatitis web site, forum, or blog?
- http://prostatitis.org
Comment Wall (1 comment)
- At 11:52am on June 24, 2012,
Chris said…
Hello Hunter,
Apologies for my late response to your freind's request. I rarely sign in these days. If you want to ask me any questions, I prefer answering them via private email. Privacy is not guaranteed using this website.
My email is ch.jeffries@yahoo.co.uk
Regards
Chris
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