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What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
25
If you have been diagnosed with prostatitis, please tell us your story: age, duration of symptoms, treatments, results, and the like.
I am 42 years old.
My first onset was in 1998, no bacteria whatsoever was found. the diagnosis was based on TRUS examination. The symptoms have lasted for 9 months and then disappeared after having taken several months of various type of Abx.
Afterwards, during 10 years I have been symptom free.
In september 2008 it relapsed again but stronger than the first time, I consulted an urologist immediately and the treatment was the same as 10 years ago: Abx + antiinflamatory for weeks without much sucess...high leucocytes number have been found in my urine after prostate massage but no bacteria even by PCR testing.
I have visited several urologists without any improvement...Until I found one who prescribed me Tramadol to cope with the pain, this drug works great for me and at least I could start to control more or less my pain.
In the "race" of finding a cure, i come along with the intraprotastic injection treatment....then I have tried one direct injection of Abx laced with steroid into the prostate with my local uro, it was a disaster...no improvement but worsening of the pain...
After that, every time I have a beginning of a flare up I go to see my Urologist: he does a urine anlaysis after prostate massage and a PSA check....sometimes it is found e-coli bacteria but I am not sure that it is here from the beginning or just a contamination from the intraprostatic injection...however the treatment is always the same: intraveneous injection of antibiotic if necessary,xatral for urine flow and tramadol for pain control.
Recently I have had a very bad flare up, still suffering...very debilitating...I am contemplating surgery.

Comment Wall (12 comments)

At 5:21pm on March 3, 2009, CHARLES said…
Jef, thanks for your comment. I was diagnosed with chronic prostatitis. It was not specified (chronic bacteria or non-bacteria chronic prostatitis) by different urologists that I saw. But some bacteria was noted in my prostate fluid that was sent to quest diagnostic (lab). So I guess my diagnoses was chronic bacteria prostatitis. However, what is most important now is that I am free from fatigue and debilitating pain that comes with either one of them. Thanks to Dr. Krongrad initiative of Non-Random Phase 11 LRP Chronic Prostatitis Research.
At 8:11am on June 22, 2009, Robert Patterson said…
Jef,

My prostatititis was diagnosed as chronic bacterial. The bacteria were defined-sometimes as many as 5 different types at the same time. Then the growing culture was tested so that I would take antibiotics that the bacteria was sensitive to. It worked to a point and the bacteria was backed up and I felt better for a while but the bacteria always came back. Interestingly many of the bacteria were resistant to many of the more normal antibiotics so I ended up taking 2 or 3 at the same time to confuse ( per the physican ) the bacteria. This made me sick and I believe that the bacteria must have holed up somewhere in cells in the prostate and then came back after I quit taking the antibiotics. However, how much antibiotics can a person take without doing major damage to their health?

Having said the above, there are many who have responded positively to this aggressive antibiotic treatment so it is probably the first thing that should be tried. There are some very good labs in the US that can define the bacteria for you if in fact you have bacterial prostatitis. you can get a could specimen by taking a urine specimen immediately following a prostate massage. However, if this treatment does work I would suggest that you have acute prostatitis and not chronic and your prostatitis will be behind you. I hope this answers your question.
At 9:27pm on June 22, 2009, Robert Patterson said…
Jeff,

I am not so sure about these various diagnosis. In my opinion, there are very few labs that can pick up the types of bacteria you are carrying in your prostate. As I said earlier, taking antbiotics that the bacteria is resistent to, is a complete waste of time and hard on a person's general health. The direct injections do not effect your general health which is a plus.
At 12:17pm on July 31, 2009, Nik said…
Hi jef, I lost your email address when my computer crashed. You can send me it again if you like on nikolasbartley@gmail.com, my new email address.

Thanks

Nik
At 10:10am on August 29, 2009, Robert Patterson said…
Jef,

The good news is that the pain and discomfort experieinced with the prostatitis is now minimal. I do see days where I experieince a little more perineal discomfort than I would like but compared to the before it is nothing and certainly not a issue I cannot live with and over time may completely disappear. I have not taken or even considered taking a pain killer of any kind since the first 2 days after the operation. As an added bonus, my IBS which I believe was started by all the antibiotics is also slowly but surely clearing up.

As far as the operation is concerned I am still experiencing bladder and incontinence issues. I can tell for a number of reasons that the bladder is not functioning at 100%. I have talked to the doctor and it would appear that the recoveries from this type of operation fit into many different categories and my situation is not that unusual.

What I am struggling most with is to find the right balance between staying somewhat active and not tiring myself out which would slow down or delay the recovery. This sounds easy but in reality is not. As an example, since I have a long ( 1 hour plus ) drive to work, I work from home 2-3 days per work and if I feel myself going backwords just stay at home another day.

Thanks for your interest.

Bob
At 8:53pm on October 18, 2009, Robert Patterson said…
Jef,

Everything is going well. The pain, IBS, lack of energy, etc. etc. are all basically gone. I no longer take drugs of any kind. Pain killers, anti-inflamatory drugs, anti-biotics, etc are all in the past. It is now very clear to me that the prostatitis was more debilitating than I actually realized. I had the problem so long that it became difficult to distinquish between the norm ( how I should feel ) and how I actually felt on a daily basis. Here is a simple example-for the past 5-10 years I have hated any kind of travel as I always ended up in pain. In the past 3 weeks I have travelled more by car than in the past 5 years in total with absolutely no side effects. This is allowed me to watch my race horses live and enjoy the total experience.
It must be remembered that after any major operation there is a significant period of healing. I am now 4.5 months since the operation and I am finally getting to the point where I no longer tire out easily. In fact, some days I feel so good that I have a tendency to over do it which slows me down for a day or two. However, even this side effect is disappearing and the only major issue is my bladder which is still not 100%. Given that this was my 3rd operation in 9 years ( bladder neck and TURP ), this was not unexpected. To be specific so you have a reference for comparison, I have been dry at night since the catheter ws removed and one pad each day is all that is required now with the exception of highly active physical outings-golf, long walks etc. Although slow the stress incontinence continues to improve and is more an inconvenience than anything else. I read another fellows report where he indicated that the erectile dysfunction continued to be a work in progress. I would have to say this comment fits my situation as well which I is exactly what I expected at this stage of my recovery.

If you have any specific questions, let me know and I will do my best to answer them. I do plan on writing a report for the Krongrad Insitute website. I am just waiting until I have the full story. If I wrote the report today, it would be considerably different than what I would have written a month ago. As I said earlier, I really did not know how poor my quality of life really was.

Bob
At 9:24pm on August 17, 2010, Kim Hunt said…
Yes please do and if she has any questions tell her just to ask. I will be posted more soon.
At 9:12am on January 9, 2012, jorge gomez said…

Hi, Jef. Thanks for answering my friendship call. I want to make you a question.

I don´t want to bore you with my history, but i have diagnosed with prostatitis this very week, and as you can imagine, my life is in ruins. I with my wife cried a lot for the end of our happy life. There were the worst days of my entire life. I can´t understand how i would live and be a father of my two little kids and a partner for my wife if i live in permantent pain. So the question is: have you ever find or heard about any pain killer that at last help partially to decrease the pain? I mean every drug that i tracked this painfull week on the web... does anyone work? allicin max, tramadol, saw palemtto, propoleo, cernilton, lyrica quercitin, trycyclic antidepresasant, beta sitosterol? Thanks in advance.

At 10:52am on January 7, 2013, Rob said…
Jeff what are your symptom?
At 7:56pm on January 7, 2013, jeffos said…

My symptoms are mainly pain related especially sitting pain, to the point that i am using a donut cushion everywhere: work, plane, car, train...in addition i got all the "satellites" common CP symptoms but not constantly like: weak urinary stream, fatigue, low Libi...etc

 

 

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