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Acute and chronic prostatitis discussion. Arnon Krongrad, MD, moderator.

Jake James
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Coping With Prostatitis
7 Replies

Started this discussion. Last reply by Jake James Jun 23, 2010.

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Jake James replied to Jake James's discussion Coping With Prostatitis
"At this point I have no symptoms at all.. I find it hard to believe.. The last pain attack was about 3 months ago and that was after 1 beer on a hot Sydney day after not having any alchohol for months.. Since then, nothing. The orthotic souls work…"
Jun 23, 2010
Jake James and G8 GT are now friends
Jun 23, 2010
Jon replied to Jake James's discussion Coping With Prostatitis
"Thanks for the advice, Jake. I've never considered orthotic soles, so that might be worth investigating."
Feb 2, 2010
Jake James replied to Jake James's discussion Coping With Prostatitis
"Hi Jon, Yoga Stretches have been very helpful in stretching and loosening the pelvic area.. If you decide to go to a yoga class, mention to the instructor that you have a prostate issue and ask for the recommended stretches...There are many books…"
Jan 31, 2010
Jon replied to Jake James's discussion Coping With Prostatitis
"Can anyone tell me what kind of stretching exercises might be useful for prostatitis? I try to take regular exercise, but haven't tried anything like yoga, so I'd be grateful of any advice."
Nov 21, 2009
Shehan Pingamage replied to Jake James's discussion Coping With Prostatitis
"Hi Jake, Thats some real good advice that you have posted there! I pretty much do almost all of the things that you mention as being important. My experience is pretty similar. It started very suddenly for me about 3 1/2 years ago, and i think the…"
Nov 17, 2009
Jake James replied to Jake James's discussion Coping With Prostatitis
"Hi Jeff, That's some really good input that you have put in..Now that it's almost summer here, I look forwward to lots of swimming ... I understand how you have lost your faith in the medical system.. What country are you based in? Just…"
Nov 16, 2009
jeffos replied to Jake James's discussion Coping With Prostatitis
"I really would like to be as positive as you, I have been sick for 14 months...Abacterial Chronic prostatitis. Sometimes it was so bad that i couldn't even sit and the doctors were never considering this disease seriously, I mean as a normal…"
Nov 15, 2009
Jake James posted a discussion

Coping With Prostatitis

With no real understanding of what prostatitis even was, it came as quite and assault on the senses to be told that I had prostatitis, of which I couldn't get answers on the causes to be able to come to terms with the effect..In my own journey, there were times in the lead up to eventually going to the doctor that I couldnt sit down, urine leeks, dizziness, cold sweats, confusion and the list goes on..As a male, we are accustomed to be able to deal with pain, to be able to handle the tough hits…See More
Nov 11, 2009
Jake James left a comment for Arnon Krongrad, MD
"Hi Doctor, Thank you for your reply. I guess my query came from the comment regarding high percentage of men with chronic prostatits developing prostate cancer .. PSA level is ok at 1.2. My father had acute prostatitis, but no cancer.. Thanks…"
Nov 11, 2009
Arnon Krongrad, MD left a comment for Jake James
"Great update. Thank you. Sure, biopsy can miss cancer. Why are you worried about cancer? PSA? Family history?"
Nov 10, 2009
Jake James was featured
Nov 10, 2009
Jake James updated their profile photo
Nov 10, 2009
Jake James left a comment for Jake James
"Hi Doctor, I hope that all is well with you.. Have been offline for a little while and have some new information that may be of interest.. I went for a cystoscopy last Tuesday ( btw i loved being under general until it began to wear off -…"
Nov 10, 2009
Arnon Krongrad, MD left a comment for Jake James
"All right, so this is great. You're going to start a group on ways to cope with prostatitis. First of all, let's make you more presentable. Please go back to your My Page and load in a photo. You'll be much more memorable that…"
Jul 22, 2009
Robert Patterson left a comment for Jake James
"I am sorry I can not help you with this one. However, what I do know is that the few doctors who are doing radical prostatectomies for chronic prostatitis are finding a very high occurance of cancer. The numbers of these operations are quite low.…"
Jul 22, 2009

Profile Information

What is your score on the Chronic Prostatitis Symptom Index (posted on home page)?
13/8/11
Thank you Doctor..You are correct in the CPSI being 32.. My age is 36.. I will do my best to upload a photo soon.. The duration of symptoms has been for over 12 months but only treated in november 2008, when i finally went to seek help..

Im being taken care of by my doctor here in sydney and a specialist.. im on the hospital waiting list for a cystoscopy.. also getting good help from my naturopath..

have gone to hospital twice with severe pain and sent home with pain killers ( panadein forte)..we have excellent doctors here but our health system, which is generally very good, is overloaded at this present time.. my specialist has about 20 people in his waiting room at any one time.. its crazy, a visit lasts about 7 minutes max and costs AU $250.00 approx plus plus plus..again, overload !

my ultra sound also showed that i had gross fecal matter in my large intestine.. it has since been cleared out but the pain hasnt stopped..




Comment Wall (11 comments)

At 9:02am on July 16, 2009, Jake James said…
have tried cyproxin, am taking saw palmetto, akalizers, vitamin c, fish oil, been for colonic hydrotherapy, completely changed my diet..etc.. going for a cystoscopy..also ridded myself of parasites that i picked up in asia.. crazy shit man..
when the prostate becomes enflamed, i get dizzy spells,short term memory loss, agitated and sometimes irrational.. i pray for things to get better and keep away from stressful situations as best i can.. im over it.. has been going going on for months and months and i just cant stop the pain... it may leave me for a day or so and just when i think its going to get better, it comes back..i dont mean to come across like a victim.. there isnt anybody that really understands other than a fellow sufferer and lets face it, nobody likes to talk about it or doctors, who unfortunately are unable to give a straight answer due to the complex nature of the prostate..
At 9:15am on July 16, 2009, Arnon Krongrad, MD said…
Hi Jake,

Welcome to the network.

Do I understand correctly that your CPSI score is 32?

If you are open to it please "edit" your profile and photo on your My Page. This will help others more precisely interact with you. Such things as age, duration of symptoms will help.

Who is taking care of you now?

Thank you.

Arnon Delete Comment
At 11:45pm on July 16, 2009, Arnon Krongrad, MD said…
Not sure if you're near Darlinghurst, but I was walking by a hospital there when a bird pooped on my head. The Aussies told me that's a sign of good luck.
At 12:40am on July 17, 2009, Jake James said…
not far from darlinghurst and yes, hahaha its supposed to be a sign of good luck.. it happens alot here, which could explain why we get called the lucky country :).. im guessing that the hospital that you could have been walking by was st vincents ?

question : is this prostate issue, something that i am stuck with for life?
At 9:24am on July 17, 2009, Arnon Krongrad, MD said…
Yes. I think St Vincent's. We were walking to the Darlinghurst market, I think on a Saturday morning.

Prostatitis is not necessarily a lifelong problem. However, many patients have symptoms, including very severe symptoms, for years and even decades. Have a look at the stories of Dave, Merlin, and Ike to get a sense of the severity in some cases.
At 12:02am on July 18, 2009, imnotcrazy said…
good luck james ! just be careful . many men have got hurt looking for a cure .
myself and few other men have been trick into having surgeries we should not have had . but we were desperate and in pain.

god bless us all!!!
At 10:44am on July 19, 2009, Arnon Krongrad, MD said…
Interesting post to imnotcrazy. I am not aware of any data to support the steps outlined. For example, I am not aware of any data to show that to "alkalinize" the body is in any way useful in treating the symptoms of prostatitis. However, you do touch on a critically important concept: coping. How do men cope with the sometimes seemingly endless burden of prostatitis? Maybe it's time to start a group on coping strategies, to explore such subjects as prayer, yoga, exercise, and the like. What do you think? Do you want to start the group? If you do, I'll show you how and also how to get discussions going. Let me know.
At 9:05am on July 22, 2009, Robert Patterson said…
I am sorry I can not help you with this one. However, what I do know is that the few doctors who are doing radical prostatectomies for chronic prostatitis are finding a very high occurance of cancer. The numbers of these operations are quite low. However, the few doctors doing these operations talk to each other and I have heard #'s as high as 80%. Dr Krongrad would be a better person to ask as he has first hand experieince.
At 11:13am on July 22, 2009, Arnon Krongrad, MD said…
All right, so this is great. You're going to start a group on ways to cope with prostatitis.

First of all, let's make you more presentable. Please go back to your My Page and load in a photo. You'll be much more memorable that way.

Secondly, please go to the Groups tab and click on +Add a Group in the upper right. Pick a name, like "Coping With Prostatitis."

You'll need to load in an image that will forever be associated with the group. So click here to see how we did it with the "Coping with Prostate Cancer" group on another network.

Put in a description, which will always appear at the top. Something like "For discussion what we can do to feel better while suffering with prostatitis: diet, meditation, yoga, exercise, prayer ...." You can then pretty well ignore the rest of the fields.

Once the group is complete you can invite other members to join from inside it. And you can +Start Discussion (under the photo) on any topic you like that relates to coping.
At 12:49am on November 10, 2009, Jake James said…
Hi Doctor,

I hope that all is well with you.. Have been offline for a little while and have some new information that may be of interest..

I went for a cystoscopy last Tuesday ( btw i loved being under general until it began to wear off - everything was so damn good)

I will have the results later this week..

The interesting information is this, my doctor has opted for the eastern appraoch and has explained that bio mechanics play a role in chronic prostatitis.. i have some orthotics on order and will let you know how it goes..

Also, he has begun using acupuncture as a remedy which I did for the first time today. I will be having 10 treatments over 5 weeks ( x 2 per week)..

I have stuck with the fish oil, saw palmetto etc for the last few months and feel great apart from the discomfort in the prostate area ( which has subsided)..

The nurse did mention that they found a stricture in my urethra which may have caused the prostatitis.. Will have more information when the report is released.. My doctor argues that it is the inflamed prostate that causes the stricture..

Either way, the natural approach so far ( other than the cystoscopy and cyproxin in the early stages of diagnosis) have been less invasive and generally, a better feeling of health..

I looked at you recent blog regarding the incidents of cancer in prostatitis sufferers.. Is there by any chance, during the cystoscopy and if a biopsy was taken, that they could miss cancerous cells?

Thank you for your time..

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