Hi, Arnon.

Thanks to read me . The surgery was to remove a 'Thornwald' kist. Of course I got a catheter for about 24 hours. .

Today, I am experimenting essential oils combination in suppository. No promise at all, but who knows? I'll let you know the outcome.

rgds

Clvt

Hi, Arnon. Have to say that on a scale of 10, pain reduced  down to 3 since the fourth day of the cure with EO's. I just needed two days to adjust the dosage. Initially 130 mg which caused nausea, I cut suppository in two parts, twice a day.

After a week of treatment I feel so good that I succeeded with a sexual intercourse. My urologist prescribed me a 30 days cure while I am doing a lithotripsy once a week  during five weeks.

The only side effect is the anal irritation due to suppository. Nothing compared to pain relief I was looking for since more than 5 years. I do relive myself !

regards - Clvt

Hi Dr.Arnon,

Thank you for message.

Yes, in the beginning, I was treated with Ciprofloxacin. It diminished the symptoms for just a couple of days,

, then the relapse came. Just to add some data: PSA is 0.8, urine test and cultive are normal. US of the urinary system shows everything is OK. Testicle US shows a very very small varicocele in left scrotum, US doctor said it is almost insignificant and improbable of causing pain .

Symptoms keep coming and going. For instance, I haven't had any difficulty while orinating already for 10 days. Nor I got lower back pain or butt pain.  But instead got left testicle pain, specially if pressed somehow, by underwear or while driving. When the butt pain comes back the testicle pain dissapears and so on. The pain seem to move from one area to the other. After sexual relations there is a discomfort/mild pain in scrotum and the side of the leg in front of it, usually the day after. In 3 months, I got only 2 episodes of pain while ejaculating - beyond that, there is mild discomfort in scrotum right after sexual intercourse, and it becomes a little more painful the day after.

Why is all the pain concentrating in the left side of the pelvic area? (the only exception were a couple of days with pain in both the left and right side of butt. The majority of the time pain is in the left scrotum, left leg, left butt, left side of pennis).

Thank you for your time reading this,

Kino

I have maintained the anti candida diet for almost 8 weeks now and I believe I am almost free of the condition ,I might consider asking my GP for a short course of Fluconasole because I can feel very slight signs of the fungus which is probably just hanging into the prostate  by a thread but if that isn`t completely eliminated it will just start growing again when I start adding stuff back in my diet ,which I must start doing soon because one feels the lack of a bit of sugar etc.

      I would strongly urge anyone who has run out of ideas for treatment to at least try dieting the key element in a diet like this is it requires the very strictest application ,absolutely no cheating ,it`s pretty daunting to start with but one adjusts fairly quickly and I have to say I am thrilled with results and have started to enjoy life once more.

Thanks Dr. Arnon.

Yes my history seems related to the weightlifting on the surface, but as always there are a lot of variables.  For example, I had done this same type of lifting in the past with no flareups....I had been doing the same exercises for 6 weeks without incident when my condition slowly came on over the course of a week or so.

On the other hand, both times it seems like lifting seemed to trigger or at least compound the problem.

Hernia has been ruled out by physical exam and two CT scans (pelvic with oral contrast and appendix scan with contrast administered via enema - was that a horrific procedure!).  PCP doctor referred me to urologist who also confirmed non-infectious prostatitis diagnosis but it didn't seem based on anything but his intuition and experience.  Also went to the ER last week and they found no problems via blood and urine tests and the appendix CT.  ER doctor suggested a gastroenterologist which I have yet to visit.

Can you give me some more info on how you would recommend following up to see if this is a spinal issue and not related to prostate?

hey... just wanted to tell my story.

13 year prostatitis struggle and success.

gathering my thoughts now and thinking back over the last 13 years.

will post soon.

chris

I appreciate the suggestions, Dr. Arnon.  I ended up in the ER recently because my pain was getting more acute and just felt really "wrong".  Have had probably 4 CT scans in the past month and no issues found anywhere.  Testicular ultrasound normal, all bloodwork and urine tests again come up negative.  On the plus side I had some cardiac tests done which I needed to get done and there were no problems detected with the heart!

So my pain usually has a testicular component, a muscle-feeling component when it has flared up the two times (again both after hitting the gym a couple times doing squats and deadlifts among other things - no maxxing out, just putting up 5 reps).  The pain is not always in the same spot.   I may wake up with my left teste hurting and maybe feeling that pain radiate up into the pelvis somewhere, then after lunch and sitting around all day I may get find that the pain is now exclusively in the area right around the appendix and my testes don't present anything??  Then later it's mainly in my perineum area or it may feel like something is pinching my sphincter.  I don't understand why it's so transitory??

As of yesterday I have developed the biggest muscle knot in my life on the right side of my lower back.  I'm assuming its from being fairly immobile for so long, but maybe a spinal issue could cause all of these symptoms?

Dave

I should add that this 2nd round of symptoms has mostly subsided and is only now minor teste pain which could be on either side at any given time and minor discomfort on the right pevlis - along with the back pain from the huge knot.

Both flareups lasted about 9 days.  I don't know if that's significant..

One last question.  Is there ANY WAY one could have a bacterial infection of the prostate or anywhere else and NOT have any red flags on multiple urine tests and blood tests?  I'm questioning why the doc still has me on Cipro when no evidence of a bacterial infection is present?

Dave

Hello Dr Krongrad,

Thank u for the personal welcome...I was a member of the old prostatitis board that shut down and had been viewing your site as an observer...appreciate the time u take to interact in the discussions on here...very rare to find from most doctors.  I will add more to my profile later, but yes I have been suffering from chronic prostatitis for over 7 years now!

No, I don't know my score.  I have been dealing with prostatitis for 6 Years now.  Every urol I see doesn't want to do anything about it but put me on antibiotics.  They don't help a bit.  I'm in bad pain with this every other day of my life and It's putting a strain on my marriage and family as well.

Any suggestions, I will defenately try anything.  I was trying Quercetin but didn't help.

Hello Dr. Krongrad,

Thank you for your message.  I am writing out of sheer desperation and fear.  My husband (53 y.o.) has been having some strange symptoms for about 7 weeks.  His symptoms are:  Lower abdominal pain, lower back pain, pain in his penis, rectum, scrotum, testicles and the entire groin area, in general.  He reports that it hurts (the bones in his groin area just to sit down).  He also has some pain upon urination and ejaculation.  His doctor suspected Diverticulitis and put him on a course of antibiotics (Doxycycline and Metronidazole), which he just finished, after 10 days, to no avail.  His urologist did see some blood in his urine, which may be attributed to a kidney stone that they saw on u/s (has history of stones).  He reports, however, that this is unlike the intense pain he has had from stones.  The urologist did a bladder scan and said bladder is emptying fine.  She did a prostate exam, as well.  She said she was "stumped".  His GP ordered a ct scan this week, which showed only a "resolving Colitis".  He has not noticed any blood in his bowel movements, however, and from what I read, that is the most prevalent symptom.  We are both experiencing terrible anxiety and fear.  I am worried that he has advanced bladder cancer because I read that it can cause these symptoms.  I believe an abdominal ct scan (which is what he had) would not look at the bladder, correct?  When reading about the symptoms of Prostatis, I thought it would be worth learning more.  Any thoughts that you may have would be GREATLY appreciated.

Yes, I've mentioned possibility of reactive arthritis to the doctor who is in charge of my treatment. This is a general practitioner though. She does not seem too willing to refer me to specialist doctors yet as my blood tests, urine tests, MR of knees, lower part of spine and hip area were all normal. Chlamydia test was also negative after treatment. I have only slight pain in knees - mostly after trying to jump, run. So the doctor assumes that if it was or is reactive arthritis it is dying out and the prostatitis I have will also die out or is not part of the reactive arthritis. Probably I shall put more pressure on my doctor. I didn't question her decisions so far as reactive arthritis according to doctors goes away on its own in most cases. I'm going to have three weeks off in June and already booked consultations with a good rheumatologist and additionally urologist to discuss treatment options.

Dr. Krongrad, I have some questions

1. Is cystoscopy essential to check if there are some scars or obstructions in urethra or sth wrong with the bladder? Sometimes the urine stream is quite normal, sometimes it is weak and thin. The more stabbing in anus area and perineal area, the weaker and thinner the stream. Does it mean there is no obstructive factors anatomically and obstruction comes from swelling of prostata when it gets more inflamed?

2. Is transrectal ultrasonography more precise then the one through abdomen?

3. Have you had or heard of patients with reactive arthritis or some autoimmune diseases who benefited from methotrexate or other similar drugs used in autoimmune diseases?

Thank you and God bless you for the work you do

I have tried mostly antibotics some steroids and alfa blockers and a drug called avadart. I serioulsy have had so many test and most say I have chronic prostitis and I do think thats what I have. One think makes me think I may have something else. Sence day one two years ago my bowl movement have change and today my main complant is diggestion as my stomach always hurts and I dont go regular at all. I have seen a gi twice and they cant find anything. It seems to go hand in hand with my prostitis symtoms as in poor flow, sore sitting and grown , and when I ejaculate i am either very slow flow or nothing at all. I kinda have been jumping around from doctor to doctor trying to get results and I think I am about to try and pick a doctor regardless of results. Any suggestions I would be greatful and anyone with bowl problems I woulod love to hear. Seems like when my colonoskopy was clear they just dont want to looking in to anything else. Seems to me there could be other things going on that you may show in that test. thanks for your time

Hi Dr. Krongrad, thanks for replying,

what would you suggest in a case like mine? I am 37, married 3 years ago, no children and I would like to have at least 1. What would you suggest to try for someone like me? LRP doesn't sound to hard/risky for someone like me?

I've tried all conventional treatments, but nothing works. That's why I'm desperate, because really this desease makes your life like hell, you can't work well, you can't enjoy the normal things that life offers, it is a non-stop battle against pain and desperation.

I'm for trying injections as I've heard from my doctor that some times people get cured.

Thanks for the help.

Best Rgds,

J.

hi Aron

no i have not had a culture as yet, i see my urolagist on the 26.8,2011 should i ask to have this done? i have never had non specific urethritis or urethral discharge, as for trauma  i did have a double groin hernia repair about 15 years ago but nothing recent.

As you can see by my history Arnon Kronard I dont have many options left.

Chris

Hi Dr Krongrad,

Thank you for this site and the information about prostatitis. 

You kindly asked me if I had PSA checked and whether I had trauma, history of cancer or vasectomy. I have had PSA checked many times - always it being in normal values. I have not had a vasectomy and I don't know of any history of cancer in my family.

When I got prostatitis 20 years ago for the first time, it began with blood in semen. My symptoms have always been gnawing pain in the perineum area and the feeling like a lump in the rectum. My first bout took about a year to get rid of with many different antibiotics used. I was then living in England and was being treated by a research urologist at Oxford University (attached to the John Radcliffe Infirmary).

I've lived in Calgary Canada for 18 years and my urologist gives me flomax (useless) and he just shrugs saying that there isn't a cure for this problem. He referred me to a physio who does pelvic floor massage and told me to take quercertin. I have not had the PF massage yet.

My symptoms generally go away after a few weeks of levaquin and diclonefec. The problem for me is that bouts of pain etc are always caused by ejaculation. This of course means I rarely engage in this practise. I get temped once in a while when my wife says "maybe it's okay now" but truth is, whatever is broken seems to stay broken.

When I do ejaculate, the pumping action behind the mechanism (maybe it has a name) is very weak and so it sort of feels like there is a constriction. The liquid does not exit like it used to when I was younger - it just flows out gently.

Here is another strange behaviour. The last time I went to the ER for a very acute bout (two years ago), the ER doc gave me percocet (cetaminophen and oxycodone). Taking these and anything with codeine (tylenol 3) makes the pain increase. My urologist is stumped - I can tell he thinks I have lost the plot. I had sinus surgery two years ago and had no prostate issues at the time. After surgery, I was given percocet and the prostate pain started to present itself about one day later. I stopped taking them - the pain subsided.

I have no trouble with urinating. I don't have to urinate frequently at night and have no pain in the tip of the penis. Usually at the beginning of a bout (like I have this week), I get chills and sweats - kind of like flu for a two or three days.

You asked about trauma. When I was 18 I had a motorcycle accident. The result was some internal injuries and so I had my spleen removed and my left kidney is smaller as it was torn and was sewn back together. Today it functions perfectly as far as they can tell. I have a mid-line incision from just below left lower rib to one inch below the naval. 

Thank you for asking about my story. Again, thanks for your site and the information here.

Robert

My urologist mentioned that it might originate from my spine, but no tests were done.  I don't recall any injury or funny movements.  I don't really have any spinal pain.  My pain is all in my lower pelvic area.  I feel pressure against my rectum and bladder feeling a painful urge to urinate all the time.   Would welcome any suggestions.

Hello Dr. Krongard,

I had a TURP 16 days ago and overall it went really well.  My only concern, and it's a substantial one, is  regarding my orgasms.  I've had two orgasms since the TURP (on days 14 and 16 after the surgery) and the sensation I experienced during orgasm was a "2" whereas before surgery it was a "10."  My urologist said that it was highly unlikely that the orgasm sensation would change as a result of the TURP and all the literature I've read says the same.  Is it maybe because I'm having orgasms too soon after surgery?   I'm in overall great health and just 51 years old so the thought of living the rest of my life without at least decent orgasms is very depressing.  Any info you can provide would be very much appreciated.  Thank you.

There is a general tendency, and maybe it applies to you, too, to rush and prove "manhood" in all its facets after prostate surgery. This reflects anxiety in most cases. And anxiety in itself can negatively affect orgasm, as well as many other functions and pleasures. I'd be interested to hear how you do not 2 weeks after surgery but 6 months after surgery.

Went back to my PC a week & a half ago, the only antibiotic i was on was levofloxacin for 10 days by my urologist so my PC put me on sulfameth after 2 days bad reaction (light headed, cold sweat, burning urine, in frequent urination) stopped, switched to cipro 500mg 2x a day for a month,  taking a few vitamins and supliment super beta prostate.Been on a low acid ic diet since before the new year,spring water, not much change,very down. See my PC in a week or so,dont know whats next, hope he does

Hi Dr Krongard.

When you do LRP for prostatitis do you spare the internal sphincter and what effect this has to incontinence?